《新冠长期症状患者的体验：一项定性研究》
"": A qualitative exploration of the experiences of young people with Long COVID.
机构信息
Population, Policy and Practice Department, UCL Great Ormond Street Institute of Child Health, UK.
NHS North Thames Genomic Laboratory Hub, Great Ormond Street Hospital for Children NHS Foundation Trust, UK.
出版信息
Clin Child Psychol Psychiatry. 2024 Jul;29(3):783-798. doi: 10.1177/13591045241252463. Epub 2024 May 8.
Young people living with Long COVID are learning to navigate life with a constellation of poorly understood symptoms. Most qualitative studies on experiences living with Long COVID focus on adult populations. This study aimed to understand the experiences of young people living with Long COVID. Qualitative, semi-structured interviews were conducted ( = 16); 11 young people (aged 13-19) and five parents were recruited from the Children and Young People with Long COVID (CLoCk) study ( = 11) or its patient and public involvement and engagement (PPIE) group ( = 5). Thematic analysis generated four themes: (i) Unravelling Long COVID: Exploring Symptom Journeys and Diagnostic Dilemmas; (ii) Identity Disruption and Adjustment; (iii) Long COVID's Ripple Effect: the impact on Mental Health, Connections, and Education; and (iv) Navigating Long COVID: barriers to support and accessing services. Treatment options were perceived as not widely available or ineffective, emphasising the need for viable and accessible interventions for young people living with Long COVID.
年轻人正在学习应对一系列尚未完全了解的症状，与长期新冠共存。大多数关于长期新冠患者生活体验的定性研究都集中在成年人群体上。本研究旨在了解年轻人与长期新冠共存的经历。从儿童和青少年长期新冠（CLoCk）研究（n=11）或其患者和公众参与及参与（PPIE）小组（n=5）中招募了 11 名年轻人（年龄 13-19 岁）和 5 名家长，进行了定性、半结构化访谈。主题分析产生了四个主题：（i）揭开长期新冠的面纱：探索症状之旅和诊断困境；（ii）身份破坏和调整；（iii）长期新冠的连锁反应：对心理健康、人际关系和教育的影响；（iv）应对长期新冠：支持和获得服务的障碍。治疗选择被认为没有广泛提供或无效，强调需要为患有长期新冠的年轻人提供可行和可获得的干预措施。
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