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The Need for a Bleed Type-Specific Annual Bleeding Rate in Hemophilia Studies.血友病研究中特定出血类型年出血率的必要性。
JMIR Public Health Surveill. 2024 Mar 13;10:e51372. doi: 10.2196/51372.
2
Authors' Reply: "The Need for a Bleed Type-Specific Annual Bleeding Rate in Hemophilia Studies".作者回复：“血友病研究中特定出血类型年出血率的必要性”
JMIR Public Health Surveill. 2024 Mar 13;10:e54756. doi: 10.2196/54756.
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引用本文的文献

1
Authors' Reply: "The Need for a Bleed Type-Specific Annual Bleeding Rate in Hemophilia Studies".作者回复：“血友病研究中特定出血类型年出血率的必要性”
JMIR Public Health Surveill. 2024 Mar 13;10:e54756. doi: 10.2196/54756.

本文引用的文献

1
Quantifying Benefit-Risk Trade-Offs Toward Prophylactic Treatment Among Adult Patients With Hemophilia A in China: Discrete Choice Experiment Study.定量评估中国成人甲型血友病患者预防性治疗的获益-风险权衡：离散选择实验研究。
JMIR Public Health Surveill. 2023 Jul 26;9:e45747. doi: 10.2196/45747.
2
Individualised prophylaxis based on personalised target trough FVIII level optimised clinical outcomes in paediatric patients with severe haemophilia A.基于个体化目标 FVIII 浓度阈值的个体化预防治疗可优化重度 A 型血友病患儿的临床结局。
Haemophilia. 2022 Nov;28(6):e209-e218. doi: 10.1111/hae.14635. Epub 2022 Jul 18.
3
Similar sports participation as the general population in Dutch persons with haemophilia; results from a nationwide study.荷兰血友病患者与普通人群相似的运动参与度；一项全国性研究的结果。
Haemophilia. 2021 Sep;27(5):876-885. doi: 10.1111/hae.14366. Epub 2021 Jun 19.
4
WFH Guidelines for the Management of Hemophilia, 3rd edition.《血友病管理的居家指南》第三版
Haemophilia. 2020 Aug;26 Suppl 6:1-158. doi: 10.1111/hae.14046. Epub 2020 Aug 3.
5
Understanding minimum and ideal factor levels for participation in physical activities by people with haemophilia: An expert elicitation exercise.了解血友病患者参与体育活动的最低和理想因子水平：一项专家 elicitation 研究。
Haemophilia. 2020 Jul;26(4):711-717. doi: 10.1111/hae.13985. Epub 2020 Apr 8.

The Need for a Bleed Type-Specific Annual Bleeding Rate in Hemophilia Studies.

作者信息

Huang Kun

机构信息

Department of Pediatrics, The First Affiliated Hospital, Zhejiang University School of Medicine, Hangzhou, China.

出版信息

JMIR Public Health Surveill. 2024 Mar 13;10:e51372. doi: 10.2196/51372.

DOI:10.2196/51372
PMID:38478908
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10973962/
Abstract
摘要