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患者和公众参与慢性呼吸道疾病研究的影响：ConectAR项目经验

The impact of patient and public involvement in chronic respiratory disease research: the ConectAR experience.

作者信息

Sá-Sousa Ana, Figueiredo Daniela, Dias Costa Emília, Fernandes Silvana, Fonseca Nancy, Matos Paula, Campião Abel, Areia Margarida, Dias Liliana, Amaral Rita, Chaves Loureiro Claúdia, Boechat José Laerte, Baía Reis António, Fonseca João Almeida, Neves Ana Luísa, Jácome Cristina

机构信息

CINTESIS@RISE, MEDCIDS, Faculty of Medicine of the University of Porto, Porto, Portugal.

CINTESIS@RISE, University of Aveiro, School of Health Sciences - Aveiro, Aveiro, Portugal.

出版信息

Breathe (Sheff). 2024 Mar;20(1):230173. doi: 10.1183/20734735.0173-2023. Epub 2024 Mar 12.

DOI:10.1183/20734735.0173-2023
PMID:38482185
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10928555/
Abstract

https://bit.ly/3Oq13se.

摘要

https://bit.ly/3Oq13se. （此为链接，无法准确翻译为中文，保留原文即可）

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6d64/10928555/6872d7da17da/EDU-0173-2023.01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6d64/10928555/6872d7da17da/EDU-0173-2023.01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6d64/10928555/6872d7da17da/EDU-0173-2023.01.jpg

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本文引用的文献

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Health Expect. 2024 Feb;27(1):e13917. doi: 10.1111/hex.13917.
2
Principles of patient partnership: integrating patient perspectives into ERS Clinical Research Collaborations.患者合作原则：将患者观点纳入欧洲呼吸学会临床研究合作
Breathe (Sheff). 2023 Mar;19(1):220159. doi: 10.1183/20734735.0159-2022. Epub 2023 Apr 11.
3
ConectAR: Collaborative network of patients with asthma and carers actively involved in health research: a protocol for patient and public involvement.
ConectAR：哮喘患者和护理人员积极参与健康研究的协作网络：患者和公众参与的方案。
Eur Ann Allergy Clin Immunol. 2023 Jul;55(4):180-188. doi: 10.23822/EurAnnACI.1764-1489.249. Epub 2022 Mar 10.
4
How to incorporate patient and public perspectives into the design and conduct of research.如何将患者和公众的观点纳入研究的设计与实施过程中。
F1000Res. 2018 Jun 18;7:752. doi: 10.12688/f1000research.15162.1. eCollection 2018.
5
What do patients know? Education from the European Lung Foundation perspective.患者了解什么？从欧洲肺部基金会的角度看教育问题。
Breathe (Sheff). 2018 Mar;14(1):30-35. doi: 10.1183/20734735.020217.
6
How to optimise patient and public involvement in your research: Doing science.如何优化患者及公众参与你的研究：开展科研工作。
Breathe (Sheff). 2015 Sep;11(3):223-7. doi: 10.1183/20734735.007615.