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如何将患者和公众的观点纳入研究的设计与实施过程中。

How to incorporate patient and public perspectives into the design and conduct of research.

作者信息

Hoddinott Pat, Pollock Alex, O'Cathain Alicia, Boyer Isabel, Taylor Jane, MacDonald Chris, Oliver Sandy, Donovan Jenny L

机构信息

Nursing, Midwifery and Allied Health Professions Research Unit, Faculty of Health Sciences and Sport, University of Stirling, Stirling, FK9 4LA, UK.

Nursing, Midwifery and Allied Health Professions Research Unit, Glasgow Caledonian University, Glasgow, G4 0BA, UK.

出版信息

F1000Res. 2018 Jun 18;7:752. doi: 10.12688/f1000research.15162.1. eCollection 2018.

Abstract

International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research.  PPI is defined as research being carried out 'with' or 'by' patients and members of the public rather than 'to', 'about' or 'for' them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants.  Ethical considerations also differ.  PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination.  Occasionally patients lead or do research.  The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls.  It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.

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