Hoddinott Pat, Pollock Alex, O'Cathain Alicia, Boyer Isabel, Taylor Jane, MacDonald Chris, Oliver Sandy, Donovan Jenny L
Nursing, Midwifery and Allied Health Professions Research Unit, Faculty of Health Sciences and Sport, University of Stirling, Stirling, FK9 4LA, UK.
Nursing, Midwifery and Allied Health Professions Research Unit, Glasgow Caledonian University, Glasgow, G4 0BA, UK.
F1000Res. 2018 Jun 18;7:752. doi: 10.12688/f1000research.15162.1. eCollection 2018.
International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research. PPI is defined as research being carried out 'with' or 'by' patients and members of the public rather than 'to', 'about' or 'for' them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants. Ethical considerations also differ. PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination. Occasionally patients lead or do research. The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls. It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.
国际政府指南建议患者和公众参与（PPI），以提高研究的相关性和质量。PPI的定义是研究由患者和公众“共同进行”或“由他们进行”，而不是“针对”、“关于”或“为了”他们（http://www.invo.org.uk/）。患者参与不同于将患者作为参与者收集数据。伦理考量也有所不同。PPI是指患者通过讨论积极参与从研究构思到传播的研究设计、可接受性、相关性、实施和管理等决策。偶尔患者会主导或开展研究。PPI的研究方法范围从非正式讨论到合作研究方法，如行动研究、共同生产和共同学习。本文讨论了研究人员在申请研究资金时如何让患者参与，并考虑了一些机会和陷阱。它回顾了研究资助者的要求，借鉴了文献以及我们作为临床医生、患者、学者和英国资助小组成员的集体经验。
