Tabassum Tahsin T, Rahman Nur-A-Safrina, Hossain S M Shakhawat, Abdullah Faisal, Nawar Lubaba Tasneem, Lima Fahmida I, Gupta Mridul, Kona Suraiya P, Podder Vivek
Department of Health Sciences, University of York, Heslington, United Kingdom.
Department of Health and Nutrition, Save the Children in Bangladesh, Dhaka, Bangladesh.
J Family Med Prim Care. 2024 Jan;13(1):278-284. doi: 10.4103/jfmpc.jfmpc_616_23. Epub 2024 Feb 8.
Schizophrenia is a severe mental disorder affecting millions worldwide. Family caregivers play a vital role in patient treatment and recovery, but their responsibilities can be physically and emotionally exhausting. There is limited research on caregiver burden in Bangladesh, prompting this study to identify factors associated with the burden among caregivers of schizophrenic patients.
This cross-sectional study collected data from 175 caregivers from January to December 2020 in Dhaka, Bangladesh. A semi-structured questionnaire and a validated Bangla version of the Zarit Burden Interview (ZBI) scale were used to assess the burden of primary caregivers and associated factors in caring for patients with schizophrenia.
Participants' mean age was 34.02 ± 10.45 years, with 26.9% in the 34-41 age group. 49.1% were housewives, with most earning 5000 to 15000 taka monthly. Spouses accounted for 28.6% of caregivers. Most patients had an illness duration of less than five years (66.3%). Mean ZBI score was 49.49 ± 12.06, indicating moderate to severe burden. Factors significantly associated with caregiver burden included age, gender, occupation, income, marital status, house condition, relationship with patients, illness stage, and duration.
This study highlights the burden experienced by caregivers of schizophrenic patients in Bangladesh and identifies factors associated with the burden. It recommends community interventions and psychosocial provisions to address this issue and inform targeted interventions to reduce caregiver burden. These findings provide insights for a comprehensive plan to manage such cases in the future.
精神分裂症是一种严重的精神障碍,影响着全球数百万人。家庭照顾者在患者的治疗和康复中起着至关重要的作用,但他们的责任可能会在身体和情感上让人疲惫不堪。孟加拉国对照顾者负担的研究有限,促使本研究确定精神分裂症患者照顾者中与负担相关的因素。
这项横断面研究于2020年1月至12月在孟加拉国达卡收集了175名照顾者的数据。使用半结构化问卷和经过验证的孟加拉语版 Zarit 负担访谈(ZBI)量表来评估主要照顾者的负担以及照顾精神分裂症患者的相关因素。
参与者的平均年龄为34.02±10.45岁,其中26.9%在34-41岁年龄组。49.1%是家庭主妇,大多数人月收入为5000至15000塔卡。配偶占照顾者的28.6%。大多数患者的病程少于五年(66.3%)。ZBI平均得分为49.49±12.06,表明负担为中度至重度。与照顾者负担显著相关的因素包括年龄、性别、职业、收入、婚姻状况、住房条件、与患者的关系、疾病阶段和病程。
本研究突出了孟加拉国精神分裂症患者照顾者所经历的负担,并确定了与负担相关的因素。它建议采取社区干预和心理社会措施来解决这一问题,并为有针对性的干预措施提供信息以减轻照顾者负担。这些发现为未来管理此类病例的综合计划提供了见解。