Faculty of Sport Sciences, Universidad Europea de Madrid, Villaviciosa de Odón, Madrid, Spain.
Asociación Española de Linfedema y Lipedema, AEL, Madrid, Spain.
Breast Cancer Res. 2024 Mar 14;26(1):47. doi: 10.1186/s13058-024-01806-9.
Breast cancer-related lymphedema is currently one of the most serious complications that most affect the quality of life of women undergoing breast cancer. The aim of this study was to explore in-depth the experience of women who suffer from lymphoedema after breast cancer and how does this condition affect corporeality, with no judgements. For this purpose, a qualitative methodology was followed. In-depth interviews, interviewer's field notes and participants' letters were used for data collection. The participants were twenty Spanish women with lymphoedema after overcome a breast cancer in the past. Healthcare specialists with experience in the topic were also included. Results showed 2 main categories: "From cancer to lymphedema, another disease another disease" and "Potential for transition and transformation towards a new way of life". As a conclusion, the difficulty in accessing adequate treatment, the need for greater awareness of lymphedema and the importance of the emotional and psychological dimension of this chronic disease. Highlighting the attitudes that these women develop for self-care and the concept of new corporeality. After breast cancer, women with lymphedema experience a drastic change that affects all areas of their lives. The adaptation process, and the search for resources and aid, play a fundamental role in overcoming this process.
乳腺癌相关性淋巴水肿是目前影响大多数乳腺癌患者生活质量的最严重并发症之一。本研究旨在深入探讨患有乳腺癌后淋巴水肿的女性的体验，以及这种状况如何影响身体意象，不做任何评判。为此，采用了定性方法。使用深度访谈、访谈者的现场笔记和参与者的信件来收集数据。参与者是 20 名在过去患有乳腺癌后出现淋巴水肿的西班牙女性。还包括在该主题方面有经验的医疗保健专家。结果显示了 2 个主要类别：“从癌症到淋巴水肿，另一种疾病”和“向新生活方式转变的潜力”。结论是，获得适当治疗的困难、对淋巴水肿的更大认识的需要以及这种慢性疾病的情感和心理维度的重要性。强调了这些女性为自我护理发展的态度和新身体意象的概念。患有淋巴水肿的乳腺癌女性经历了影响其生活各个方面的巨大变化。适应过程以及寻找资源和援助对于克服这一过程起着至关重要的作用。
