测量有和无癌症史的女性在法国首次 COVID-19 相关封锁期间的重新概念化和重新优先化:SeiQol-DW 和 PGI 的改编。
Measuring reconceptualization and reprioritization during France's first COVID-19-related lockdown in women with and without a history of cancer: an adaptation of the SeiQol-DW and PGI.
机构信息
Inserm U1296, Radiations: Santé, Défense, Environnement, University Lumière Lyon 2, Lyon, France.
Groupe de Recherche en Psychologie Sociale UR 4163, University Lumière Lyon 2, Lyon, France.
出版信息
Qual Life Res. 2024 May;33(5):1423-1431. doi: 10.1007/s11136-024-03626-y. Epub 2024 Mar 19.
PURPOSE
This study aimed to provide a better understanding of the patient-perceived effects of France's first COVID-19-related lockdown on the quality of life (QoL) of women affected by cancer, and to test an ad hoc measurement scale for evaluating quasi-individualized QoL. QoL was measured for both during (i.e., current) and before (i.e., retrospectively) the lockdown. Respondents were women registered on the research platform Seintinelles.
METHODS
A tool for measuring quasi-individualized QoL was adapted from the SeiQol-DW and PGI. It was distributed as part of a larger online self-questionnaire to a sample of 1303 women with a history of cancer (i.e., former or current) and with no such history.
RESULTS
Current and retrospective QoL scores were not significantly different between the two respondent groups. An analysis of reconceptualization and reprioritization revealed a cancer-specific effect: women with a history of cancer reconceptualized more, while women with no such history reprioritized more.
CONCLUSION
Our novel ad hoc quasi-qualitative tool made it possible to assess the QoL of women with a history of cancer, a particularly vulnerable population in the context of the COVID-19 pandemic. Furthermore, it highlighted a difference in reconceptualization and reprioritization between this population and women with no such history.
目的
本研究旨在更好地了解法国首次与 COVID-19 相关的封锁对受癌症影响的女性生活质量(QoL)的患者感知影响,并测试一种专门用于评估准个体化 QoL 的测量量表。在封锁期间(即当前)和之前(即回顾性)对 QoL 进行了测量。受访者为注册在研究平台 Seintinelles 上的女性。
方法
一种用于测量准个体化 QoL 的工具是从 SeiQol-DW 和 PGI 改编而来的。它作为一个更大的在线自我问卷的一部分分发给了一个有(即以前或现在)和没有癌症史的 1303 名女性样本。
结果
在有和没有癌症史的两组受访者中,当前和回顾性 QoL 评分没有显著差异。重新概念化和重新优先排序的分析显示出癌症特异性效应:有癌症史的女性重新概念化更多,而没有此类病史的女性则重新优先排序更多。
结论
我们的新型专用准定性工具使评估有癌症史的女性的生活质量成为可能,这是 COVID-19 大流行背景下一个特别脆弱的人群。此外,它突出了这一人群与无此类病史的女性之间在重新概念化和重新优先排序方面的差异。