Pannard Myriam, Bauquier Charlotte, Bassoleil Lauriane, Sablone Laura, Jacob Guillemette, Reyal Fabien, Préau Marie
Université Lumière Lyon 2, groupe de recherche en psychologie sociale (GRePS), 5, avenue Pierre-Mendès-France, 69500 Bron, France.
Université Lumière Lyon 2, groupe de recherche en psychologie sociale (GRePS), 5, avenue Pierre-Mendès-France, 69500 Bron, France.
Bull Cancer. 2020 Mar;107(3):333-343. doi: 10.1016/j.bulcan.2019.11.012. Epub 2020 Feb 7.
Health researchers often face difficulties related to participants' recruitment for their research. However, a new strategy emerges: offering patients-but also citizens who are not ill-the possibility to volunteer as participants to hasten research processes. The French platform "Seintinelles" aims to fulfill this goal and bring together citizens who volunteered to participate to cancer related research. The "Seintinelles Barometer" aims to describe these volunteers' profile.
The Seintinelles Barometer data were collected through a web-based auto-questionnaire proposed to the "Seintinelles" members from June 2017 to November 2018.
The sample presents a high level of overrepresentation of women. Participants are characterized by a high level of education. About a third of the participants had suffered from cancer. Two profile of volunteers emerged: the « patients » and the « supportive citizens ».
The Seintinelles Barometer participants manifest a strong wish to be involved in cancer related research. Therefore, this platform seems to be a promising tool for the development of community-based research in the field of cancer.
健康研究人员在为其研究招募参与者时常常面临困难。然而,一种新策略出现了:为患者——以及非患病公民——提供作为志愿者参与研究以加速研究进程的可能性。法国的“哨兵”平台旨在实现这一目标,并将自愿参与癌症相关研究的公民聚集在一起。“哨兵晴雨表”旨在描述这些志愿者的特征。
“哨兵晴雨表”的数据通过2017年6月至2018年11月向“哨兵”成员提供的基于网络的自动调查问卷收集。
样本中女性的比例过高。参与者的特点是受教育程度高。约三分之一的参与者曾患过癌症。出现了两种志愿者类型:“患者”和“支持性公民”。
“哨兵晴雨表”的参与者表现出强烈的参与癌症相关研究的愿望。因此,这个平台似乎是癌症领域基于社区的研究发展的一个有前途的工具。