Laki Kálmán Doctoral School, University of Debrecen, Debrecen, 4032, Hungary.
Faculty of Arts, Institute of Psychology, University of Debrecen, Debrecen, 4032, Hungary.
Sci Rep. 2024 Mar 21;14(1):6754. doi: 10.1038/s41598-024-57442-y.
Children's hospitalisation is difficult for the family and the immediate environment. In these cases, the provision of psychological support is particularly important. Chronically ill children who are regularly hospitalised are in a particularly difficult situation, often feeling vulnerable. Our research aims to explore and analyse in detail the psychological state, attitudes and mental health of chronically ill children and to compare patient groups (children receiving care in pulmonology, gastroenterology, onco-haematology and rehabilitation) to understand the interacting factors, which may be of great importance for quality patient care and for measures to improve patient care in the future. We studied chronically ill children (N = 107) aged 10 to 18 years (M = 14.3; SD = 2.0), cared for by the Department of Paediatric Rehabilitation, Paediatric Psychiatry and Psychosomatics of the University of Debrecen Clinical Centre, the second largest paediatric institution in Hungary. In our survey, sociodemographic questions, the Connor-Davidson Resilience Scale, the Satisfaction With Life Scale, the Cantril Ladder, the Non-Productive Thoughts Questionnaire, the Problematic Internet Use Questionnaire, the Drawing version of Pictorial Representation of Illness Self-Measure (PRISM-D), the Beck Depression Inventory-Shortened Scale, the Illness Intrusiveness Ratings Scale, the Spielberger State-Trait Anxiety Questionnaire-Child Version and the Strength and Difficulty Questionnaire were applied. One-way analysis of variance (ANOVA) was used to examine differences between groups, and Pearson rank correlation analysis was used to measure the relationships between individual variables. The results show significant differences between patient groups in terms of resilience, depression, nonproductive thoughts, problematic internet use, anxiety and coping, but no consistent pattern in the development of scores. In addition, for some psychological correlates, the role of sociodemographic background also showed significant results. The practical utility of our study is that using questionnaire methods to map patient satisfaction, compliance, and patient attitudes will provide regarding the factors that influence the mental health status of children living with chronic illnesses. In the light of this, additional methods and tools can be included to improve the quality of healthcare and to develop a set of procedures that will serve the intended purpose.
儿童住院对家庭和其周围环境来说是困难的。在这种情况下，提供心理支持尤为重要。经常住院的慢性病儿童处于特别困难的境地，常常感到脆弱。我们的研究旨在详细探讨和分析慢性病儿童的心理状态、态度和心理健康，并比较患者群体（在肺病学、胃肠病学、肿瘤血液学和康复科接受治疗的儿童），以了解相互作用的因素，这些因素对提供优质的患者护理和制定未来改善患者护理的措施可能非常重要。我们研究了 107 名 10 至 18 岁（M=14.3；SD=2.0）的慢性病儿童，他们在匈牙利第二大儿科机构德布勒森大学临床中心的儿科康复科、儿科精神病学和心身医学科接受治疗。在我们的调查中，使用了社会人口统计学问题、Connor-Davidson 弹性量表、生活满意度量表、Cantril 阶梯、非生产性思维问卷、问题性互联网使用问卷、图画式疾病自我测量版本（PRISM-D）、贝克抑郁量表缩短版、疾病侵扰量表、斯皮尔伯格状态特质焦虑问卷儿童版和长处和困难问卷。我们采用单因素方差分析（ANOVA）来检验组间差异，采用 Pearson 等级相关分析来测量个体变量之间的关系。结果表明，在弹性、抑郁、非生产性思维、问题性互联网使用、焦虑和应对方面，患者组之间存在显著差异，但得分的发展没有一致的模式。此外，对于一些心理相关因素，社会人口统计学背景的作用也显示出显著的结果。我们研究的实际意义在于，使用问卷调查方法来绘制患者满意度、依从性和患者态度，将为影响慢性病儿童心理健康的因素提供信息。在此基础上，可以纳入其他方法和工具，以提高医疗保健质量，并制定一套旨在达到预期目的的程序。
