Care and Public Health Research Institute, Maastricht University, Maastricht, P.O. Box 616, The Netherlands.
Endocrinology and Diabetes Department, Hamad Medical Corporation, Doha, P.O. Box 3050, Qatar.
F1000Res. 2024 Feb 20;11:907. doi: 10.12688/f1000research.123468.2. eCollection 2022.
Adherence to insulin and blood glucose monitoring (BGM) is insufficient in adolescents and young adults (AYAs) with type 1 diabetes (T1D) worldwide and in Qatar. Little is known about the factors related to being aware of suboptimal adherence and the beliefs related to suboptimal adherence in this group. This qualitative study investigated factors related to awareness of, and beliefs about suboptimal adherence, as well as the existence of specific action plans to combat suboptimal adherence using the I-Change model.
The target group was comprised of 20 Arab AYAs (17-24 years of age) with T1D living in Qatar. Participants were interviewed via semi-structured, face-to-face individual interviews, which were audio-recorded, transcribed verbatim, and analyzed using the Framework Method.
Suboptimal adherence to insulin, and particularly to BGM, in AYAs with T1D was identified. Some AYAs reported to have little awareness about the consequences of their suboptimal adherence and how this can adversely affect optimal diabetes management. Participants also associated various disadvantages to adherence ( , hypoglycemia, pain, among others) and reported low self-efficacy in being adherent ( , when outside home, in a bad mood, among others). Additionally, goal setting and action-planning often appeared to be lacking. Factors facilitating adherence were receiving support from family and healthcare providers, being motivated, and high self-efficacy.
Interventions that increase awareness concerning the risks of suboptimal adherence of AYAs with T1D are needed, that increase motivation to adhere by stressing the advantages, creating support and increasing self-efficacy, and that address action planning and goal parameters.
在全球范围内,包括卡塔尔在内,青少年和年轻成年人(AYAs)患有 1 型糖尿病(T1D)时,他们对胰岛素和血糖监测(BGM)的依从性不足。对于与意识到依从性不佳相关的因素以及与该人群中依从性不佳相关的信念,人们知之甚少。本定性研究使用 I-Change 模型调查了与意识到、对依从性不佳的信念相关的因素,以及存在针对对抗依从性不佳的具体行动计划的情况。
目标人群由 20 名居住在卡塔尔的阿拉伯 AYAs(17-24 岁)组成。参与者通过半结构化的面对面个人访谈进行了采访,访谈内容被录音、逐字记录下来,并使用框架方法进行了分析。
研究确定了 T1D AYAs 的胰岛素依从性,尤其是 BGM 依从性不佳的情况。一些 AYAs 报告说,他们对自己依从性不佳的后果以及这如何对最佳糖尿病管理产生不利影响几乎没有认识。参与者还将各种不利因素与依从性相关联(例如,低血糖、疼痛等),并报告了在某些情况下的依从性自我效能较低(例如,离家在外、心情不好等)。此外,目标设定和行动计划似乎经常缺乏。促进依从性的因素包括获得家人和医疗保健提供者的支持、有动力和高自我效能。
需要针对 T1D AYAs 开展提高对依从性不佳风险的认识的干预措施,通过强调优势、创造支持和提高自我效能来提高依从性的动力,并解决行动计划和目标参数的问题。