Department of Pediatrics, Employees State Insurance Corporation Medical College and Hospital (ESIC MCH), Faridabad, Haryana. Correspondence to: Dr Jagdish Chandra, B 1007, Sea Show CGHS, Plot Number 14, Sector 19B, Dwarka, New Delhi, 110075, India.
Municipal Corporation of Greater Mumbai (MCGM) Comprehensive Thalassemia Care, Pediatric Hematology-Oncology and Bone Marrow Transplantation Centre, Mumbai, Maharashtra, India.
Indian Pediatr. 2024 May 15;61(5):475-481. Epub 2024 Mar 19.
Over the years, survival of children with chronic diseases has significantly improved and a large proportion of them now are entering into adulthood. Transition of Care (ToC) of such patients with having childhood onset of chronic diseases to the adult health care system is well organized in developed countries, although it is an emerging concept in India. In situations where the systems for ToC are not in place, such cases are fraught with unsatisfactory health outcomes. With proper ToC in place, these patients are likely to receive uninterrupted care by the adult care physicians and hence reach their full potential. This document highlights the need, rationale and way forward for ToC of youth with special health care needs (YSHCN) across the country. It also describes the standard operating procedures to develop the ToC at a hospital level for clinicians and administrators.
多年来，患有慢性疾病的儿童的生存率显著提高，其中很大一部分现在已经进入成年期。在发达国家，这些儿童时期患有慢性疾病的患者向成人保健系统的过渡护理（ToC）已经得到很好的组织，尽管在印度这还是一个新兴概念。在没有 ToC 系统的情况下，这些情况往往会导致健康结果不理想。通过适当的 ToC，这些患者很可能会接受成年保健医生的不间断护理，从而充分发挥他们的潜力。本文件强调了全国范围内有特殊医疗需求的青年（YSHCN）进行 ToC 的必要性、基本原理和前进方向。它还描述了为临床医生和管理人员在医院层面制定 ToC 的标准操作程序。
