School of Nursing, Lanzhou University, Lanzhou, Gansu, PR China.
Department of Critical Care Medicine, Lanzhou University First Hospital, Lanzhou, Gansu, PR China.
J Clin Nurs. 2024 Aug;33(8):2949-2970. doi: 10.1111/jocn.17112. Epub 2024 Mar 25.
(1) To describe existing tools to assess the burden of informal caregivers of people with cancer, (2) to describe how these tools have been validated and (3) to describe the areas of interest of existing assessment tool entries.
The caregiver burden of informal caregivers of people with cancer greatly affects their lives. There is a wide variety of relevant assessment tools available, but there are no studies to help researchers to select tools.
A search was conducted using the keywords 'cancer', 'caregiver', 'burden' and 'scale' in Medline (PubMed), CINAHL and EMBASE to include articles that developed or applied tools to assess the burden on informal caregivers of cancer patients. Once eligible tools were identified, we searched their 'primary reference' studies. If the original scale was assessed in a population other than informal caregivers of cancer patients, we again searched for psychometric measures in the population of caregivers of cancer patients.
This study retrieved 938 articles on developing or applying the informal caregiver burden instrument for cancer patients, including 42 scales. Internal consistency of the original scales ranged from 0.53 to 0.96. Nineteen scales initially developed to assess caregiver burden for patients with dementia, stroke and other disorders were later used for caregivers of cancer patients, eight of which have not yet been validated. Reclassifying all scale domains of concern revealed that scale assessments focused more on caregivers' physical health, emotional state and caregiving tasks.
This review identifies many scales for assessing informal caregiver burden in cancer patients and gives scales recommended. However, a portion still needs to be validated. The development of a new scale proposes to be based on a theoretical framework and to consider dimensions for assessing support resources.
What problem did the study address?: This paper collates assessment tools on the burden of informal carers of people with cancer. It also provides information on the applicable population, reliability and validity. What were the main findings?: 41 scales could be considered for use, eight of which have not been validated. The scales focus more on assessing caregivers' physical health, emotional state and caregiving tasks, and less on the dimension of support resources. Where and on whom will the research have an impact?: There are implications for informal carers of cancer patients in hospitals or in the community, as well as for relevant researchers.
Retrieved with reference to systematic evaluation.
No patient or public contribution.
（1）描述评估癌症患者非专业照护者负担的现有工具，（2）描述这些工具的验证情况，（3）描述现有评估工具条目的关注领域。
癌症患者非专业照护者的照护负担极大地影响了他们的生活。有各种各样相关的评估工具，但没有研究可以帮助研究人员选择工具。
使用关键词“cancer（癌症）”、“caregiver（照护者）”、“burden（负担）”和“scale（量表）”在 Medline（PubMed）、CINAHL 和 EMBASE 中进行检索，纳入开发或应用工具评估癌症患者非专业照护者负担的文章。一旦确定了合格的工具，我们就会检索它们的“原始参考文献”研究。如果原始量表是在非癌症患者非专业照护者人群中评估的，我们会再次在癌症患者照护者人群中寻找心理测量学指标。
本研究检索到 938 篇关于开发或应用癌症患者非专业照护者负担工具的文章，其中包括 42 个量表。原始量表的内部一致性范围为 0.53 至 0.96。19 个最初为评估痴呆症、中风和其他疾病患者照护者负担而开发的量表后来被用于癌症患者的照护者，其中 8 个尚未得到验证。重新分类所有关注的量表领域表明，量表评估更侧重于照护者的身体健康、情绪状态和照护任务。
本综述确定了许多用于评估癌症患者非专业照护者负担的量表，并提供了推荐使用的量表。然而，仍有一部分需要验证。新量表的开发建议基于理论框架，并考虑评估支持资源的维度。
该研究解决了什么问题？本文综述了评估癌症患者非专业照护者负担的工具，提供了适用于人群、信度和效度的信息。主要发现是什么？有 41 个量表可供考虑使用，其中 8 个尚未验证。这些量表更侧重于评估照护者的身体健康、情绪状态和照护任务，而较少关注支持资源维度。该研究将在何处以及对谁产生影响？本研究对医院或社区中的癌症患者非专业照护者以及相关研究人员具有一定的意义。
通过参考系统评价检索。
无患者或公众参与。
