印度成年智障和/或发育障碍者家庭照顾者的正式支持和服务需求。
Formal support and service needs of family caregivers of adults with intellectual and/or developmental disabilities in India.
机构信息
Department of Disability and Human Development, University of Illinois at Chicago, Chicago, Illinois, USA.
出版信息
J Appl Res Intellect Disabil. 2024 May;37(3):e13235. doi: 10.1111/jar.13235.
BACKGROUND
Despite the enactment of disability laws/policies in India, research shows that caregivers of adults with intellectual and/or developmental disabilities experience inadequate formal supports/services due to dissemination barriers and lack of awareness about them. To address discrepancy between caregivers' support needs and the professionals' understanding of their needs, the study proposed to conduct a caregiver needs assessment so that culturally-tailored programs are developed.
METHOD
A strengths-based mixed methods needs assessment was conducted with a convenience sample of 100 caregivers in Hyderabad, India. One hundred caregivers completed the survey and 15 caregivers participated in semi-structured interviews.
RESULTS
Caregivers needed more and improved formal supports/services, particularly from the government. Caregivers faced systemic and attitudinal barriers, and personal impediments to accessing them. Needs differed by care recipients' intellectual disability level, gender, and intellectual disability related conditions.
CONCLUSIONS
Researchers, service providers and policymakers need to adopt innovative strategies to improve formal supports/services access.
背景
尽管印度颁布了残疾法律/政策，但研究表明，由于传播障碍和对这些法律/政策缺乏认识，成年智障和/或发育障碍者的照顾者获得的正式支持/服务不足。为了解决照顾者的支持需求与专业人员对这些需求的理解之间的差距，该研究建议进行照顾者需求评估，以便制定具有文化特色的方案。
方法
在印度海得拉巴，采用便利抽样法对 100 名照顾者进行了基于优势的混合方法需求评估。100 名照顾者完成了调查，15 名照顾者参加了半结构式访谈。
结果
照顾者需要更多和更好的正式支持/服务，特别是来自政府的支持/服务。照顾者面临系统和态度障碍，以及个人获取这些支持/服务的障碍。需求因照顾对象的智力残疾程度、性别和与智力残疾相关的状况而异。
结论
研究人员、服务提供者和政策制定者需要采取创新策略来改善正式支持/服务的获取。
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