Department of Human Development & Family Studies, University of Wisconsin-Madison, Madison, WI, USA.
J Appl Res Intellect Disabil. 2021 Nov;34(6):1468-1476. doi: 10.1111/jar.12889. Epub 2021 Jun 14.
Adults with intellectual and developmental disabilities and their families have high need for support services. This study assessed resource utilization among caregivers of intellectual and developmental disabilities and other conditions.
We assessed 366 caregivers of adults with intellectual and developmental disabilities, dementia or other conditions Regressions assessed group differences in number of agency contacts and frequency of service use. A secondary analysis assessed reasons for underutilization of services.
Caregivers of individuals with dementia contacted twice as many agencies as other caregivers and were more likely to report using suggested services. Agency contact and service utilization were similar among caregivers of adults with intellectual and developmental disabilities compared to other caregivers. Caregivers of adults with intellectual and developmental indicated that suggested services were unavailable to them.
The findings of this study shed light on challenges with access to and utilization of support services.
成年智障和发育障碍患者及其家庭对支持服务的需求很高。本研究评估了智障和发育障碍患者及其它患者的照料者的资源利用情况。
我们评估了 366 名成年智障和发育障碍、痴呆或其它疾病患者的照料者。回归分析评估了不同组别在机构联系数量和服务使用频率上的差异。二次分析评估了服务利用不足的原因。
痴呆患者的照料者联系的机构数量是其他照料者的两倍,更有可能报告使用建议的服务。与其他照料者相比,智障和发育障碍患者的照料者在机构联系和服务使用方面相似。智障和发育障碍患者的照料者表示,他们无法获得建议的服务。
本研究结果揭示了支持服务获取和利用方面的挑战。