医疗补助长期服务和支持以及智障和发育障碍者照顾者的照顾需求。
Medicaid long-term services and supports and caregiving needs of caregivers of individuals with intellectual and developmental disabilities.
机构信息
Department of Pediatrics, Northwell Health, New Hyde Park, New York, USA.
Department of Pediatrics, Zucker School of Medicine at Hofstra/Northwell, Hempstead, New York, USA.
出版信息
J Appl Res Intellect Disabil. 2024 Sep;37(5):e13289. doi: 10.1111/jar.13289.
BACKGROUND
Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood.
METHOD
Caregivers (n = 405) of individuals with intellectual and developmental disabilities across four states (NY, OH, TX, and PA) completed an online survey.
RESULTS
Caregivers reported a moderate degree of burden and susceptibility of stress-induced health breakdown. Despite controlling for the activities of daily living of the care recipient, caregivers of individuals with Medicaid Waiver services reported greater difficulty managing medications (p = .013) and finding paid help (p < .001) than caregivers of individuals without services.
背景
长期护理服务主要由美国医疗补助长期服务和支持提供资金，其资格仅基于个人的智力和发育障碍的护理需求。 医疗补助豁免服务对自我报告的护理人员需求的影响尚不清楚。
方法
来自四个州（纽约州、俄亥俄州、德克萨斯州和宾夕法尼亚州）的 405 名智力和发育障碍者的护理人员完成了一项在线调查。
结果
护理人员报告了中等程度的负担和易受压力导致健康崩溃的影响。 尽管控制了护理对象的日常生活活动，但与没有服务的个人的护理人员相比，拥有医疗补助豁免服务的个人的护理人员报告在管理药物方面存在更大的困难（p=0.013）和寻找有偿帮助（p<0.001）。
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