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在生命尽头,由谁来判定家是否“不安全”?

Who Gets to Determine Whether Home Is "Unsafe" at the End of Life?

作者信息

Zuo Jessica X, Ruskin Andrea, Bauer Margaret R

机构信息

University of Pennsylvania, Philadelphia.

Corporal Michael J. Crescenz Veterans Affairs Medical Center, Philadelphia, Pennsylvania.

出版信息

Fed Pract. 2023 Nov;40(11):368-372. doi: 10.12788/fp.0434. Epub 2023 Nov 9.

DOI:10.12788/fp.0434
PMID:38567121
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10984679/
Abstract

BACKGROUND

At the end of life, some patients wish to be discharged directly home from the hospital, but health care teams may consider this unsafe, raising concerns for capacity and risk. However, defining risk is subjective and impacted by values, preferences, and clinical status. Accommodating patient preferences in discharge destinations can promote autonomy, dignity, and quality of life at the end of life.

OBSERVATIONS

We developed a risk assessment framework to help clinicians objectively identify risk factors and protective factors and develop a comprehensive discharge plan. We applied this framework to a veteran nearing the end of life and he was able to successfully return home from the hospital.

CONCLUSIONS

Approaching end-of-life discharges with a framework can inform discharge planning and lessen the risk of adverse events. Importantly, this framework can help clinicians communicate better and partner with patients and their loved ones in prioritizing patient values and preferences.

摘要

背景

在生命末期,一些患者希望直接从医院出院回家,但医疗团队可能认为这不安全,从而引发对能力和风险的担忧。然而,风险的定义是主观的,且受价值观、偏好和临床状况的影响。在出院目的地方面顺应患者的偏好可以在生命末期促进自主性、尊严和生活质量。

观察结果

我们制定了一个风险评估框架,以帮助临床医生客观地识别风险因素和保护因素,并制定全面的出院计划。我们将这个框架应用于一位接近生命末期的退伍军人,他得以成功从医院返回家中。

结论

采用一个框架来处理生命末期的出院事宜可以为出院计划提供信息,并降低不良事件的风险。重要的是,这个框架可以帮助临床医生更好地沟通,并与患者及其亲人合作,以优先考虑患者的价值观和偏好。

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本文引用的文献

1
What Is an Ethically Informed Approach to Managing Patient Safety Risk During Discharge Planning?在出院计划中管理患者安全风险的伦理知情方法是什么?
AMA J Ethics. 2020 Nov 1;22(11):E919-923. doi: 10.1001/amajethics.2020.919.
2
'Not safe for discharge'? Words, values, and person-centred care.“不适宜出院”?词语、价值观与人本护理。
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Assessing the Decision-Making Capacity of Terminally Ill Patients with Cancer.评估癌症终末期患者的决策能力。
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Managing risk during care transitions when approaching end of life: A qualitative study of patients' and health care professionals' decision making.临终时护理过渡期间的风险管控:一项关于患者与医护人员决策的定性研究
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Hastings Cent Rep. 2015 May-Jun;45(3):7-8. doi: 10.1002/hast.441.
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Assessing decision-making capacity at end of life.评估生命末期的决策能力。
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Important aspects of end-of-life care among veterans: implications for measurement and quality improvement.退伍军人临终关怀的重要方面:对测量和质量改进的影响。
J Pain Symptom Manage. 2008 Feb;35(2):115-25. doi: 10.1016/j.jpainsymman.2007.03.008. Epub 2007 Nov 28.
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"Please, I want to go home": ethical issues raised when considering choice of place of care in palliative care.“求你了,我想回家”:姑息治疗中考虑护理地点选择时引发的伦理问题
Postgrad Med J. 2007 Oct;83(984):643-8. doi: 10.1136/pgmj.2007.058487.
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Difficult hospital inpatient discharge decisions: ethical, legal and clinical practice issues.
Am J Bioeth. 2007 Mar;7(3):23-8. doi: 10.1080/15265160601171739.