Cohn E R, Hesky E M, Bradley W F, McWilliams B J, Hurwitz D J, Wallace S B
Cleft Palate J. 1985 Apr;22(2):123-31.
This paper describes the life responses of two adult patients with facial deformities associated with untreated Crouzon's disease. Each patient has normal intelligence, and each has two children and close family relatives who exhibit variable degrees of Crouzon's disease. The impact of untreated facial deformity is considered, and recommendations are made for psychosocial management of these patients and their families.
本文描述了两名患有与未经治疗的克鲁宗病相关面部畸形的成年患者的生活反应。每位患者智力正常,且各有两个孩子和近亲,他们均表现出不同程度的克鲁宗病。文中考虑了未经治疗的面部畸形的影响,并针对这些患者及其家庭的心理社会管理提出了建议。