Department of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
Department of Palliative Medicine, National Cancer Center Hospital East, Kashiwa, Japan.
Jpn J Clin Oncol. 2024 Jul 7;54(7):797-804. doi: 10.1093/jjco/hyae041.
Cancer patients with children are increasing; however, few studies have quantitatively assessed the parenting concerns of cancer patients with children. The Parenting Concerns Questionnaire was developed in the USA in 2012 and is the only instrument to measure the parenting concerns of cancer patients with children. This study aimed to develop a Japanese version of the Parenting Concerns Questionnaire and evaluate its reliability and validity.
An Internet survey was conducted among cancer patients registered with 'Cancer Parents', an Internet community site for cancer patients, who have children aged <18 years, and 174 responses were recorded. Two weeks later, a retest was conducted, and responses were obtained from 87 patients.
Based on confirmatory factor analysis of the factor structure proposed by the authors of the original version, factors 'I. The impact of my illness on the child's daily life (five items)', 'II. The impact of my illness on the child's feelings (five items)' and 'III. Concerns about my parenting partner (five items)' were consistent with the original version. Cronbach's alpha coefficients for all items and by factors were 0.86, 0.79, 0.86 and 0.86. The Parenting Concerns Questionnaire total scores correlated with Hospital Anxiety and Depression Scale (r = 0.52), the Functional Assessment of Cancer Therapy General (r = -0.56), Family Assessment Device-General Functioning (r = 0.51) and Multidimensional Scale of Perceived Social Support (r = -0.47). The intraclass correlation coefficients for all items and by factors were 0.81, 0.71, 0.77 and 0.85.
The Japanese version of the Parenting Concerns Questionnaire has satisfactory reliability and validity.
有孩子的癌症患者正在增加；然而，很少有研究定量评估有孩子的癌症患者的育儿担忧。育儿担忧问卷于 2012 年在美国开发，是唯一用于测量有孩子的癌症患者育儿担忧的工具。本研究旨在开发一种日语版育儿担忧问卷，并评估其信度和效度。
通过互联网对癌症患者进行调查，这些癌症患者在“癌症父母”（一个癌症患者的互联网社区网站）上注册，他们的孩子年龄<18 岁，共记录了 174 份回复。两周后，对 87 名患者进行了重测。
基于原始版本作者提出的因子结构的验证性因子分析，因子“一、我的疾病对孩子日常生活的影响（五项）”、“二、我的疾病对孩子情感的影响（五项）”和“三、对我的育儿伙伴的担忧（五项）”与原始版本一致。所有项目和因子的克朗巴赫α系数分别为 0.86、0.79、0.86 和 0.86。育儿担忧问卷总分与医院焦虑抑郁量表（r=0.52）、癌症治疗功能评估一般量表（r=-0.56）、家庭评估装置一般功能量表（r=0.51）和多维感知社会支持量表（r=-0.47）相关。所有项目和因子的组内相关系数分别为 0.81、0.71、0.77 和 0.85。
日语版育儿担忧问卷具有良好的信度和效度。
