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地中海贫血儿童对疾病的理解:一项关于认知和情感因素的研究。

Thalassemic children's understanding of illness: a study of cognitive and emotional factors.

作者信息

Sherman M, Koch D, Giardina P, Hymowitz P, Siegel R, Shapiro T

出版信息

Ann N Y Acad Sci. 1985;445:327-36. doi: 10.1111/j.1749-6632.1985.tb17203.x.

DOI:10.1111/j.1749-6632.1985.tb17203.x
PMID:3860137
Abstract

A study that explored children's understanding of the body and illness was conducted with 23 thalassemic outpatients and 27 healthy controls. The findings were supportive of a developmental progression in children's understanding that is reflective of their underlying cognitive maturity. Behavioral compliance was related to psychiatric adjustment. There was a trend toward poorer psychiatric adjustment in children with impaired understanding of their illness. These findings hold implications for both educational and psychiatric intervention with this group. Optimal health care of chronically ill children requires knowledge of the developmental course and interplay of children's cognition and their familial and personal adjustment.

摘要

一项针对23名地中海贫血门诊患儿和27名健康对照儿童进行的研究,探讨了儿童对身体和疾病的理解。研究结果支持了儿童理解能力的发展进程,这反映了他们潜在的认知成熟度。行为依从性与精神状态调整有关。对自身疾病理解受损的儿童存在精神状态调整较差的趋势。这些发现对该群体的教育和精神干预均具有启示意义。慢性病患儿的最佳医疗保健需要了解儿童认知的发展过程及其与家庭和个人调整之间的相互作用。

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引用本文的文献

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Study of behavioral problems in multi-transfused thalassemic children.地中海贫血患儿多次输血后行为问题的研究。
Indian J Psychiatry. 2012 Oct;54(4):333-6. doi: 10.4103/0019-5545.104819.
2
Psychosocial burden in thalassemia.地中海贫血的心理社会负担
Indian J Pediatr. 2006 Oct;73(10):877-80. doi: 10.1007/BF02859278.
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An international survey of patients with thalassemia major and their views about sustaining life-long desferrioxamine use.一项关于重型地中海贫血患者及其对持续终身使用去铁胺看法的国际调查。
BMC Clin Pharmacol. 2002 Apr 23;2:3. doi: 10.1186/1472-6904-2-3.
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Psychosocial problems and adjustment of children with beta-thalassemia and their families.β地中海贫血患儿及其家庭的心理社会问题与适应情况
Eur Child Adolesc Psychiatry. 1996 Dec;5(4):193-203. doi: 10.1007/BF00538846.