Tsiantis J, Dragonas T, Richardson C, Anastasopoulos D, Masera G, Spinetta J
Aghia Sophia Children's Hospital, Department of Psychological Pediatrics, Athens, Greece.
Eur Child Adolesc Psychiatry. 1996 Dec;5(4):193-203. doi: 10.1007/BF00538846.
This study explores the psychosocial problems experienced by families with children aged 6 to 14 years suffering from beta-thalassemia major (N = 188). The psychosocial problems and the family's adjustment to the effects of the illness were compared across a number of cultures where the disease is prevalent, namely Cyprus, Greece, and Italy. A small number of migrant children in the United Kingdom was also included in the study. Semi-structured interviews were conducted with parents who also completed the Rutter Parental Questionnaire and the Goldberg General Health Questionnaire. Teachers were asked to complete a Children's Behaviour Questionnaire designed by Rutter. In all countries the disease seemed to have a binding effect on the family, thus mobilizing adaptive mechanisms. Father's low education level and the presence of major medical complications were predictors of poor family adjustment. Differences between and within countries may well reflect differences in health policies, existing level of socio-economic development, and in the cultural patterns in coping with a chronic illness.
本研究探讨了患有重型β地中海贫血的6至14岁儿童家庭所经历的心理社会问题（N = 188）。在该疾病流行的多个文化地区，即塞浦路斯、希腊和意大利，对心理社会问题以及家庭对疾病影响的适应情况进行了比较。研究中还纳入了一小部分在英国的移民儿童。对父母进行了半结构化访谈，他们还完成了《鲁特父母问卷》和《戈德堡一般健康问卷》。教师被要求完成由鲁特设计的《儿童行为问卷》。在所有国家，该疾病似乎对家庭具有凝聚作用，从而调动了适应机制。父亲教育水平低以及存在重大医疗并发症是家庭适应不良的预测因素。国家之间和国家内部的差异很可能反映了卫生政策、社会经济发展现有水平以及应对慢性病的文化模式方面的差异。
