Clinical Nursing Teaching and Research Section, The Second Xiangya Hospital of Central South University, 139 Renmin Middle Road, Changsha, 410011, Hunan, China.
Xiangya Nursing School of Central South University, Changsha, 410013, Hunan, China.
Support Care Cancer. 2024 Apr 13;32(5):286. doi: 10.1007/s00520-024-08491-6.
This study aimed to explore the characteristics of stigma in postoperative oral cancer patients to provide a reference for the formulation of targeted intervention measures.
A qualitative study was conducted on 25 postoperative oral cancer patients in a tertiary A hospital in Hunan, China, from March to July 2021. Semi-structured face-to-face interviews focused on experiences of stigma were performed. The interview data was analyzed using the NVivo V.12 software based on the reflexive intuitive thematic analysis method. The paper complies with the COREQ.
The stigma experience of postoperative oral cancer patients can be divided into 3 themes: (1) triggers (impaired appearance and oral function and psycho-social pressure); (2) forms (overall isolation, unpleasant feeling of inferiority, and unpleasant social discrimination); (3) coping strategies (positive psychological adjustment, seeking social support and coming out of the unpleasant shadows).
Postoperative oral cancer patients clearly articulated that stigma was present in their lives and they experienced multiple forms of stigma. Further work is needed to increase education and awareness about oral cancer to guide them to take positive coping and reduce stigma.
本研究旨在探讨口腔癌术后患者污名的特征，为制定有针对性的干预措施提供参考。
采用质性研究方法，于 2021 年 3 月至 7 月，选取湖南省某三级甲等医院 25 例口腔癌术后患者进行半结构式面对面访谈，深入了解患者的污名体验。采用 NVivo V.12 软件对访谈资料进行分析，基于反思性直觉主题分析法进行分析。本文符合 COREQ 报告规范。
口腔癌术后患者的污名体验可归纳为 3 个主题：（1）触发因素（外貌和口腔功能受损、心理-社会压力）；（2）表现形式（全面隔离、自卑的不愉快感、社会歧视的不愉快感）；（3）应对策略（积极的心理调整、寻求社会支持、摆脱不愉快的阴影）。
口腔癌术后患者明确表达了生活中的污名感受，经历了多种形式的污名。需要进一步开展口腔癌相关教育和宣传，以指导患者采取积极的应对方式，减轻污名。
