Department of Pediatric and Neonatal Intensive Care Nursing Education, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
J Pediatr Nurs. 2024 Jul-Aug;77:e202-e210. doi: 10.1016/j.pedn.2024.04.030. Epub 2024 Apr 16.
Pediatric Hematopoietic Stem Cell Transplant (HSCT) profoundly affects various dimensions of parents' lives. Effective coping strategies are essential for improving psychological well-being and overall quality of life. Therefore, this study aimed to explore parental coping strategies with their child's HSCT challenges.
This qualitative study was conducted in Iran from February to November 2023, utilizing conventional content analysis with purposive sampling. For data collection, unstructured interviews were conducted, followed by in-depth semi-structured interviews with open-ended questions. Saturation was reached after analyzing qualitative data from 20 participants.
Data analysis unveiled a main theme labeled "harmony in hardship". This overarching concept encapsulates the participants' endeavors to cope with the various hurdles and complexities stemming from their child's HSCT. This theme consisted of five categories: "emotional release", "positive coping", "avoidance coping", "spiritual coping", and "seeking support".
Parents utilized multifaceted coping strategies to manage the complexities of their child's HSCT journey. Understanding these mechanisms is crucial as they can positively influence parents' psychological well-being and improve their overall quality of life.
Healthcare professionals should recognize the diverse coping strategies employed by parents of children undergoing HSCT and provide tailored interventions and support. Furthermore, implementing structured support programs and training initiatives for healthcare professionals can enhance their capacity to meet the diverse needs of parents during this challenging journey.
儿科造血干细胞移植（HSCT）深刻影响着父母生活的各个方面。有效的应对策略对于改善心理健康和整体生活质量至关重要。因此，本研究旨在探讨父母应对子女 HSCT 挑战的策略。
本定性研究于 2023 年 2 月至 11 月在伊朗进行，采用目的抽样的常规内容分析法。为了收集数据，我们进行了非结构化访谈，随后对 20 名参与者进行了深入的半结构化开放式问题访谈。在分析了定性数据后达到了饱和。
数据分析揭示了一个主题，称为“在困难中求和谐”。这一总体概念包含了参与者努力应对其子女 HSCT 带来的各种障碍和复杂性的内容。这一主题由五个类别组成：“情绪释放”、“积极应对”、“回避应对”、“精神应对”和“寻求支持”。
父母采用了多种应对策略来管理其子女 HSCT 之旅的复杂性。了解这些机制至关重要，因为它们可以对父母的心理健康产生积极影响，提高他们的整体生活质量。
医疗保健专业人员应认识到接受 HSCT 的儿童的父母所采用的多样化应对策略，并提供量身定制的干预措施和支持。此外，实施针对医疗保健专业人员的结构化支持计划和培训计划可以增强他们在这一具有挑战性的旅程中满足父母多样化需求的能力。
