Health and Rehabilitation Science, Faculty of Health Sciences, Western University, London, ON, Canada.
Arthur Labatt Family School of Nursing, Western University, London, Canada.
J Biosoc Sci. 2024 Sep;56(5):809-830. doi: 10.1017/S0021932024000154. Epub 2024 Apr 17.
Persons with mental illnesses may experience stigma from their immediate family members in addition to other forms of stigma. Using semi-structured interviews, we investigated experiences of familial mental illness stigma among 15 people diagnosed with mental illnesses in a mid-sized city in Canada. We identified five themes that speak to participants' experiences of familial mental illness stigma and ways to reduce it. The themes include the following: diagnosis as a 'double-edged sword,' potential familial isolation, familial stigma as societal stigma localized, stories of acceptance, and confronting potential familial mental illness stigma. Participants' narratives indicate that familial mental illness stigma is rooted in the broader social or public stigma, which sees its way into familial relations as well. This stigma takes various forms, including relationship bias or unfair treatment, breakdown in romantic relationships, loss of status, verbal and emotional abuse, exclusion from decision-making, and alienation within their immediate and extended families. Familial mental illness stigma experiences negatively impact participant's psychological well-being and personal empowerment. However, participants also shared ways that family members create supportive environments or actively confront or prevent stigma. Overall, this study has contributed to knowledge on mental illness stigma, particularly familial mental illness stigma from the perspective of participants living with a mental illness in a high-income country. Suggestions for future research include a focus on strategies to prevent ongoing familial mental illness stigma and large-scale studies to explore familial mental illness stigma to understand why families might perpetrate stigma.
患有精神疾病的人除了遭受其他形式的污名外,还可能会受到其直系亲属的污名化。本研究采用半结构化访谈,对加拿大一个中等城市 15 名被诊断患有精神疾病的患者进行调查,了解他们在家庭中经历的精神疾病污名化的情况。研究结果确定了五个主题,反映了参与者在家庭中经历的精神疾病污名化以及减少污名化的方法。这些主题包括:诊断是一把“双刃剑”、潜在的家庭隔离、家庭污名是局部的社会污名、接受的故事和面对潜在的家庭精神疾病污名化。参与者的叙述表明,家庭精神疾病污名化根植于更广泛的社会或公众污名化,这种污名化也会影响家庭关系。这种污名化有多种形式,包括关系偏见或不公正待遇、恋爱关系破裂、丧失地位、言语和情感虐待、被排除在决策之外以及在直系和大家庭中被疏远。家庭精神疾病污名化经历对参与者的心理健康和个人赋权产生负面影响。然而,参与者也分享了家庭成员创造支持性环境或积极面对或预防污名化的方式。总的来说,这项研究有助于增加对精神疾病污名化的了解,特别是从生活在高收入国家的患有精神疾病的参与者的角度来了解家庭精神疾病污名化。未来研究的建议包括关注预防家庭精神疾病污名化的策略以及大规模研究,以了解为什么家庭可能会造成污名化。