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杜氏肌营养不良症可移动男孩定时滚动和起立测试:可行性研究。

Timed rolling and rising tests in Duchenne muscular dystrophy ambulant boys: a feasibility study.

机构信息

Department of Rehabilitation Medicine, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, Gdansk, Poland -

Department of Rehabilitation Medicine, Faculty of Health Sciences with Institute of Maritime and Tropical Medicine, Medical University of Gdansk, Gdansk, Poland.

出版信息

Minerva Pediatr (Torino). 2024 Apr;76(2):208-216. doi: 10.23736/S2724-5276.21.05977-2.

Abstract

BACKGROUND

Functional activities are extensively used in motor assessments of patients with Duchenne muscular dystrophy. The role of timed items has been reported as an early prognostic factor for disease progression. However, there are two functional activities that are not widely assessed in clinical practice among Duchenne muscular dystrophy patients: rolling and bed rising. This study aimed to investigate whether the 360-degree roll (roll) and supine to sit-to-edge (bed rise) measurements are feasible tools reflecting the functional status of ambulatory DMD children by establishing possible correlations between validated measures: the Vignos Scale (VS), timed rise from floor and the 6-Minute Walk Test (6MWT).

METHODS

A total of 32 ambulant boys with DMD were assessed using timed items, the 6MWT and VS.

RESULTS

The roll and bed rise are correlated with each other. The 6MWT, the floor rise and VS are correlated with the roll and with the bed rise.

CONCLUSIONS

Findings offer preliminary empirical evidence addressing feasibility and safety of roll and bed rise measurements. There is a potential clinical utility of these tests in assessing functional status of DMD ambulant patients.

摘要

背景

功能性活动在杜氏肌营养不良症患者的运动评估中被广泛应用。计时项目的作用已被报道为疾病进展的早期预后因素。然而,在杜氏肌营养不良症患者的临床实践中,有两种功能性活动未被广泛评估:滚动和起床。本研究旨在通过建立与验证性测量之间的可能相关性,探讨 360 度滚动(滚动)和仰卧位至坐边缘(起床)测量是否是反映活动性 DMD 儿童功能状态的可行工具:Vignos 量表(VS)、从地板计时起身和 6 分钟步行测试(6MWT)。

方法

共 32 名活动性 DMD 男孩接受了计时项目、6MWT 和 VS 的评估。

结果

滚动和起床相互关联。6MWT、地板起身和 VS 与滚动和起床相关。

结论

这些发现为评估杜氏肌营养不良症活动性患者的功能状态的滚动和起床测量的可行性和安全性提供了初步的经验证据。这些测试在评估 DMD 活动性患者的功能状态方面具有潜在的临床应用价值。

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