Department of Adult Health Nursing (N.A.-A.), Faculty of Nursing, The Hashemite University, Zarqa, Jordan.
Center Al Kafeel Superspeciality Hospital (A.A.I.), Karbala, Iraq.
J Pain Symptom Manage. 2024 Aug;68(2):123-131. doi: 10.1016/j.jpainsymman.2024.04.016. Epub 2024 Apr 26.
Internationally, studies suggest that inadequate comprehension of the concept of palliative care and misconceptions about it hinder the effective use of palliative care, especially in developing nations.
To assess the awareness of the adult population in Jordan regarding palliative care.
The study used a cross-sectional design and an online self-administered questionnaire survey. The recruitment method was convenience snowball sampling of three thousand nine hundred forty-two Jordanian adults covering 12 governorates. Participants were recruited through social media platforms like Facebook and WhatsApp. The process of gathering data commenced in October -December 2023. Descriptive statistics were computed.
A study of 3942 respondents in Jordan found that 45% have some knowledge of palliative care, with 31% being pretty knowledgeable. Most respondents (89%) strongly agree that patients with incurable illnesses should receive palliative care, with cancer patients showing the highest level of agreement (96%). The most agreed-upon aspect of palliative care is controlling pain and symptoms at home, while the least agreed-upon aspect is providing information on benefits and financial matters. The study also highlighted the link between palliative care and mortality, suggesting the need for increased awareness and education.
The demand for palliative care in Jordan is increasing, requiring increased access, a holistic approach, open discussions, and easily accessible information. Challenges include integrating palliative care into non-malignant progressive diseases, ensuring comprehensive end-of-life care, promoting societal receptiveness towards mortality, enhancing information accessibility, and health promotion efforts. The study's results indicate the importance of implementing educational strategies and engaging families and communities in policymaking to change public knowledge and attitudes toward palliative care.
国际上的研究表明，对姑息治疗概念的理解不足以及对此的误解，阻碍了姑息治疗的有效应用，尤其是在发展中国家。
评估约旦成年人对姑息治疗的认知。
本研究采用横断面设计和在线自我管理问卷调查。采用方便雪球抽样的方法，招募了来自约旦 12 个省的 3942 名成年人。参与者通过 Facebook 和 WhatsApp 等社交媒体平台招募。数据收集过程于 2023 年 10 月至 12 月进行。计算了描述性统计数据。
对 3942 名约旦受访者的研究发现，45%的人对姑息治疗有一定的了解，其中 31%的人对此了解较多。大多数受访者（89%）强烈认为患有不治之症的患者应该接受姑息治疗，癌症患者的认同度最高（96%）。姑息治疗最被认同的方面是在家中控制疼痛和症状，而最不被认同的方面是提供有关福利和财务事项的信息。研究还强调了姑息治疗与死亡率之间的联系，表明需要提高认识和教育。
约旦对姑息治疗的需求正在增加，需要增加获得姑息治疗的机会、采用整体方法、进行开放讨论以及提供易于获取的信息。面临的挑战包括将姑息治疗纳入非恶性进行性疾病、确保全面的临终关怀、促进社会对死亡的接受度、增强信息获取能力以及开展健康促进工作。研究结果表明，实施教育策略和让家庭和社区参与决策制定以改变公众对姑息治疗的知识和态度非常重要。
