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数字化资源在唇腭裂患者监测中的应用:系统评价方案。

Digital resources in the monitoring of patients with cleft lip and palate: protocol for a scoping review.

机构信息

Postgraduate Program in Dentistry, Paraíba Federal University Health Sciences Center, João Pessoa, Paraíba, Brazil

Postgraduate Program in Dentistry, Paraíba Federal University Health Sciences Center, João Pessoa, Paraíba, Brazil.

出版信息

BMJ Open. 2024 Apr 29;14(4):e079698. doi: 10.1136/bmjopen-2023-079698.

DOI:10.1136/bmjopen-2023-079698
PMID:38684274
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11086441/
Abstract

INTRODUCTION

Cleft lip and/or palate (CL+/-P) is a congenital malformation affecting the lip and palate, requiring long-term treatment due to potential associated complications. For this reason, it is important for the patient to be continuously monitored and followed for health promotion and prevention, as well as improving the quality of life. The aim of this scoping review protocol is to identify and map the available evidence regarding the application of digital resources and technologies in the monitoring and follow-up of patients with CL+/-P.

METHODS AND ANALYSIS

This scoping review protocol follows the guidelines recommended by the Joanna Briggs Institute Manual, employing the PCC acronym (Patient/Concept/Context). Searches will be conducted, in May 2024, of PubMed, Web of Science, Scopus, Latin American and Caribbean Health Sciences Literature, ScienceDirect, as well as grey literature indexed in ProQuest Open Access Dissertations & Theses and Google Scholar. The review will consider all types of published studies, including grey literature, in English, Portuguese and Spanish languages, and will consider studies regardless of publication date. Exclusions will apply to studies that do not address the use of digital resources and technologies in CL+/-P monitoring and follow-up.

ETHICS AND DISSEMINATION

As this is a scoping review, no ethics committee approval is required. After completion, the plan is to publish results in scientific journals on craniofacial malformations.

STUDY REGISTRATION

Open Science Framework, DOI:10.17605/OSF.IO/Y6AG8.

摘要

简介

唇腭裂(CL+/-P)是一种影响唇和腭的先天性畸形,由于潜在的相关并发症,需要长期治疗。因此,重要的是要对患者进行持续监测和随访,以促进健康和预防,并提高生活质量。本综述方案的目的是确定和绘制可用证据,了解数字资源和技术在唇腭裂患者监测和随访中的应用。

方法和分析

本综述方案遵循乔纳森·布里格斯研究所手册推荐的指南,采用 PCC 首字母缩写词(患者/概念/背景)。将于 2024 年 5 月在 PubMed、Web of Science、Scopus、拉丁美洲和加勒比健康科学文献、ScienceDirect 以及 ProQuest 开放获取学位论文和 Google Scholar 索引的灰色文献中进行搜索。该综述将考虑所有类型的已发表研究,包括灰色文献,语言为英语、葡萄牙语和西班牙语,并将考虑无论出版日期如何的研究。排除不符合唇腭裂监测和随访中使用数字资源和技术要求的研究。

伦理和传播

由于这是一个范围综述,因此不需要伦理委员会批准。完成后,计划在颅面畸形科学期刊上发表结果。

研究注册

开放科学框架,DOI:10.17605/OSF.IO/Y6AG8。

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本文引用的文献

1
Challenges for dental care of the paediatric patient born with cleft lip and/or palate.唇腭裂患儿的口腔护理挑战。
Br Dent J. 2023 Jun;234(12):867-871. doi: 10.1038/s41415-023-5995-2. Epub 2023 Jun 23.
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Characterization of 554 Mexican Patients With Nonsyndromic Cleft Lip and Palate: Descriptive Study.554 例非综合征性唇腭裂墨西哥患者的特征:描述性研究。
J Craniofac Surg. 2023 Sep 1;34(6):1776-1779. doi: 10.1097/SCS.0000000000009455. Epub 2023 Jun 5.
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Diagnostic Value and Application of Prenatal MRI and Ultrasound in Fetal Cleft Lip and Palate.产前 MRI 和超声在胎儿唇腭裂中的诊断价值及应用。
Contrast Media Mol Imaging. 2022 May 18;2022:9410161. doi: 10.1155/2022/9410161. eCollection 2022.
4
Prenatal Consultation Outcomes for Infants With Cleft Lip With and Without Cleft Palate.唇裂伴或不伴腭裂婴儿的产前咨询结果。
Cleft Palate Craniofac J. 2023 Sep;60(9):1071-1077. doi: 10.1177/10556656221093174. Epub 2022 Apr 18.
5
Global prevalence of cleft palate, cleft lip and cleft palate and lip: A comprehensive systematic review and meta-analysis.全球唇腭裂患病率:一项全面的系统回顾和荟萃分析。
J Stomatol Oral Maxillofac Surg. 2022 Apr;123(2):110-120. doi: 10.1016/j.jormas.2021.05.008. Epub 2021 May 24.
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PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation.PRISMA 扩展用于范围审查 (PRISMA-ScR): 清单和解释。
Ann Intern Med. 2018 Oct 2;169(7):467-473. doi: 10.7326/M18-0850. Epub 2018 Sep 4.
7
Cleft lip and palate: an objective measure outcome study.唇腭裂:客观测量结果研究。
Plast Reconstr Surg. 2012 Aug;130(2):408-414. doi: 10.1097/PRS.0b013e3182589d4b.