Health Policy Research Center, Mongan Institute, Massachusetts General Hospital, Department of Medicine, Harvard Medical School, 100 Cambridge Street, Suite 1600, Boston, MA, 02114, United States.
Disabil Health J. 2024 Jul;17(3):101635. doi: 10.1016/j.dhjo.2024.101635. Epub 2024 Apr 24.
For over 50 years, federal disability civil rights laws have mandated that patients with disability receive equitable health care. However, disabled patients continue to experience health care disparities.
To explore physicians' views, in their own words, about caring for patients with disability.
Review of responses to open-ended question at the end of a nationally representative survey of 714 outpatient physicians about their experiences caring for adult disabled patients. The open-ended question asked for additional comments participants wanted to share. Only 108 (15.1 %) survey participants provided responses suitable for analysis (e.g., legible, complete thought). All issues reported here reflect comments from ≥5 participants.
Common concerns involved high costs, too little time, insufficient space, inadequate training, and lack of adequate mental health services to care for disabled patients. Many physicians appeared frustrated by legal requirements that they cover accommodation costs. Multiple physicians described as "unfair" having to pay for sign language interpreters, especially since interpreter costs generally exceed reimbursements for patients' visits. Physicians also commented on high costs and space demands of accessible exam tables, especially for small practices, and on challenges accommodating patients with severe obesity, including concerns that patients with severe obesity could damage their exam tables. Some participants suggested that disabled patients require advocates to get good quality care.
Albeit limited by the small number of responses, these open-ended comments from our nationwide survey of physicians suggest some doctors view certain accessibility requirements as unfair to them or infeasible in their practice environments.
50 多年来,联邦残疾公民权利法要求残疾患者获得公平的医疗保健。然而,残疾患者仍然面临着医疗保健方面的差距。
以医生自己的话来探讨他们对照顾残疾患者的看法。
对全国范围内对 714 名门诊医生进行的一项关于照顾成年残疾患者的经验的代表性调查的末尾的开放式问题的回复进行了回顾。该开放式问题要求参与者分享他们想要分享的其他意见。只有 108 名(15.1%)调查参与者提供了适合分析的回复(例如,字迹清晰,完整的想法)。这里报告的所有问题都反映了来自≥5 名参与者的意见。
常见的关注点涉及高成本、时间太少、空间不足、培训不足以及缺乏足够的精神卫生服务来照顾残疾患者。许多医生似乎对他们必须承担住宿费用的法律要求感到沮丧。多名医生将支付手语翻译员的费用描述为“不公平”,特别是因为口译员的费用通常超过患者就诊的报销费用。医生还评论了无障碍检查台的高成本和空间需求,特别是对于小型诊所,以及难以容纳严重肥胖患者的问题,包括对严重肥胖患者可能损坏他们的检查台的担忧。一些参与者建议残疾患者需要倡导者来获得高质量的护理。
尽管回复数量有限,但我们对全国范围内医生的开放式意见进行的调查表明,一些医生认为某些无障碍要求对他们不公平,或者在他们的实践环境中不可行。