Adsersen Mathilde, Hansen Maiken Bang, Neergaard Mette Asbjoern, Sjøgren Per, Guldin Mai-Britt, Groenvold Mogens
Palliative Care Research Unit, Department of Geriatrics and Palliative Medicine, Bispebjerg and Frederiksberg Hospital, University of Copenhagen, Copenhagen, Denmark.
Palliative Care Unit, Department of Oncology, Aarhus University Hospital, Aarhus, Denmark; Department of Clinical Medicine, Aarhus University, Aarhus, Denmark.
Acta Oncol. 2024 May 2;63:259-266. doi: 10.2340/1651-226X.2024.28515.
Danish Palliative Care Database comprises five quality indicators: (1) Contact with specialised palliative care (SPC) among referred patients, (2) Waiting time of less than 10 days, (3) Proportion of patients who died from (A) cancer or (B) non-cancer diseases, and had contact with SPC, (4) Proportion of patients completing the patient-reported outcome measure at baseline (EORTC QLQ-C15-PAL), and (5) Proportion of patients discussed at a multidisciplinary conference.
To investigate changes in the quality indicators from 2010 until 2020 in cancer and non-cancer patients. Patients/material: Patients aged 18+ years who died from 2010 until 2020.
Register-based study with the Danish Palliative Care Database as the main data source. Indicator changes were reported as percentage fulfilment.
From 2010 until 2020, the proportion of patients with non-cancer diseases in SPC increased slightly (2.5-7.2%). In 2019, fulfilment of the five indicators for cancer and non-cancer were: (1) 81% vs. 73%; (2) 73% vs. 68%; (3A) 50%; (3B) 2%; (4) 73% vs. 66%; (5) 73% vs. 65%. Whereas all other indicators improved, the proportion of patients waiting less than 10 days from referral to contact decreased. Differences between type of unit were found, mainly lower for hospice.
Most patients in SPC had cancer. All indicators except waiting time improved during the 10-year period. The establishment of the Danish Palliative Care Database may have contributed to the positive development; however, SPC in Denmark needs to be improved, especially regarding a reduction in waiting time and enhanced contact for non-cancer patients.
丹麦姑息治疗数据库包含五个质量指标：（1）转诊患者中与专科姑息治疗（SPC）的接触情况；（2）等待时间少于10天；（3）死于（A）癌症或（B）非癌症疾病且与SPC接触的患者比例；（4）在基线时完成患者报告结局量表（EORTC QLQ-C15-PAL）的患者比例；（5）在多学科会议上讨论的患者比例。
调查2010年至2020年癌症和非癌症患者质量指标的变化。患者/材料：2010年至2020年期间死亡的18岁及以上患者。
以丹麦姑息治疗数据库为主要数据源的基于登记的研究。指标变化以完成率百分比报告。
2010年至2020年，SPC中非癌症疾病患者的比例略有增加（2.5% - 7.2%）。2019年，癌症和非癌症患者五项指标的完成率分别为：（1）81%对73%；（2）73%对68%；（3A）50%；（3B）2%；（4）73%对66%；（5）73%对65%。除等待时间外，所有其他指标均有所改善，从转诊到接触等待时间少于10天的患者比例下降。发现不同类型单位之间存在差异，主要是临终关怀机构的指标较低。
SPC中的大多数患者患有癌症。在这10年期间，除等待时间外的所有指标均有所改善。丹麦姑息治疗数据库的建立可能对积极发展做出了贡献；然而，丹麦的SPC仍需改进，特别是在减少等待时间和加强对非癌症患者的接触方面。
