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揭示儿童癌症幸存者对年轻成年幸存者重新融入过程的心理社会影响的观点:一项定性探索。

Unveiling perspectives on the psychosocial impacts of childhood cancer survival on young adult survivors' reassimilation journey: A qualitative exploration.

作者信息

Racine Shanelle, Sanchez Otto, Lemonde Manon, Taccone Michael S, Schulte Fiona

机构信息

Ontario Tech University, Faculty of Health Sciences.

Childhood Cancer Survivor Canada.

出版信息

Can Oncol Nurs J. 2024 Apr 1;34(2):179-186. doi: 10.5737/23688076342179. eCollection 2024 Spring.

Abstract

BACKGROUND

Approximately 82% of children with childhood cancer survive more than five years after diagnosis. Living as a cancer survivor elicits a new reality that can include psychosocial impacts. These psychosocial impacts interact collectively, especially regarding reassimilation, and are rarely explored.

OBJECTIVE

To explore the psychosocial impacts of surviving childhood cancer and reassimilation back into society in young adult survivors of childhood cancer.

METHODOLOGY

Individual in-depth semi-structured interviews were conducted with childhood cancer survivors and explored psychosocial aspects associated with returning to work, school, and social environments after remission. Interpretive phenomenological analysis was conducted once interviews were manually transcribed. A group interview with survivors was held to discuss the study's findings and interpretation.

RESULTS

Individual interviews and the group interview revealed three major themes: outlook on reassimilating, outlook on coping, and outlook on cancer.

CONCLUSIONS

This work is a first step to understanding how survivors' personal outlook on coping and healthcare system barriers play influential roles in reassimilation following cancer treatment. Survivors expressed the need for reliable survivorship information and improved communication with healthcare providers regarding what to expect, so they could feel prepared for life post-cancer. These aspects need to be explored more deeply through other qualitative studies.

摘要

背景

大约82%的儿童癌症患者在确诊后存活超过五年。作为癌症幸存者生活引发了一种新的现实,其中可能包括心理社会影响。这些心理社会影响相互作用,尤其是在重新融入方面,而这很少被探讨。

目的

探讨儿童癌症成年幸存者童年癌症存活后的心理社会影响以及重新融入社会的情况。

方法

对儿童癌症幸存者进行了个体深入的半结构化访谈,探讨了缓解后重返工作、学校和社会环境相关的心理社会方面。访谈手动转录后进行了解释现象学分析。与幸存者进行了小组访谈以讨论研究结果和解释。

结果

个体访谈和小组访谈揭示了三个主要主题:重新融入的展望、应对的展望和对癌症的展望。

结论

这项工作是了解幸存者应对的个人展望和医疗保健系统障碍如何在癌症治疗后的重新融入中发挥影响作用的第一步。幸存者表示需要可靠的生存信息,并改善与医疗保健提供者关于预期情况的沟通,以便他们能为癌症后的生活做好准备。这些方面需要通过其他定性研究进行更深入的探讨。

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Worries of childhood cancer survivors in young adulthood.青年期儿童癌症幸存者的担忧。
Eur J Oncol Nurs. 2016 Apr;21:113-9. doi: 10.1016/j.ejon.2016.02.003. Epub 2016 Feb 23.

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