Hoffmann Kathryn, Hainzl Astrid, Stingl Michael, Kurz Katharina, Biesenbach Beate, Bammer Christoph, Behrends Uta, Broxtermann Wolfgang, Buchmayer Florian, Cavini Anna Maria, Fretz Gregory Sacha, Gole Markus, Grande Bettina, Grande Tilman, Habermann-Horstmeier Lotte, Hackl Verena, Hamacher Jürg, Hermisson Joachim, King Martina, Kohl Sonja, Leiss Sandra, Litzlbauer Daniela, Renz-Polster Herbert, Ries Wolfgang, Sagelsdorff Jonas, Scheibenbogen Carmen, Schieffer Bernhard, Schön Lena, Schreiner Claudia, Thonhofer Kevin, Strasser Maja, Weber Thomas, Untersmayr Eva
Allgemeinmedizin, Public Health und Versorgungsforschung, Abteilung für Primary Care Medicine, Zentrum für Public Health, Medizinische Universität Wien, Kinderspitalgasse 15, 1090, Wien, Österreich.
Österreichische Gesellschaft für ME/CFS, Wien, Österreich.
Wien Klin Wochenschr. 2024 Aug;136(Suppl 5):103-123. doi: 10.1007/s00508-024-02372-y. Epub 2024 May 14.
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a severe, chronic multisystemic disease which, depending on its severity, can lead to considerable physical and cognitive impairment, loss of ability to work and the need for nursing care including artificial nutrition and, in very severe cases, even death.The aim of this D-A-CH (Germany, Austria, Switzerland) consensus statement is 1) to summarize the current state of knowledge on ME/CFS, 2) to highlight the Canadian Consensus Criteria (CCC) as clinical criteria for diagnostics with a focus on the leading symptom post-exertional malaise (PEM) and 3) to provide an overview of current options and possible future developments, particularly with regard to diagnostics and therapy. The D-A-CH consensus statement is intended to support physicians, therapists and valuer in diagnosing patients with suspected ME/CFS by means of adequate anamnesis and clinical-physical examinations as well as the recommended clinical CCC, using the questionnaires and other examination methods presented. The overview of the two pillars of therapy for ME/CFS, pacing and symptom-relieving therapy options, is intended not only to provide orientation for physicians and therapists, but also to support decision-makers from healthcare policy and insurance companies in determining which therapy options should already be reimbursable by them at this point in time for the indication ME/CFS.
肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)是一种严重的慢性多系统疾病,根据其严重程度,可导致相当程度的身体和认知功能损害、工作能力丧失以及需要包括人工营养在内的护理,在非常严重的情况下甚至会导致死亡。本德奥瑞(德国、奥地利、瑞士)共识声明的目的是:1)总结ME/CFS的当前知识状态;2)强调加拿大共识标准(CCC)作为诊断的临床标准,重点关注主要症状——运动后不适(PEM);3)概述当前的选择和未来可能的发展,特别是在诊断和治疗方面。德奥瑞共识声明旨在通过充分的病史采集和临床体格检查以及推荐的临床CCC,利用所提供的问卷和其他检查方法,支持医生、治疗师和评估人员诊断疑似ME/CFS的患者。对ME/CFS的两大治疗支柱——节奏控制和缓解症状的治疗选择的概述,不仅旨在为医生和治疗师提供指导,还旨在支持医疗保健政策制定者和保险公司的决策者确定在此时对于ME/CFS适应症,哪些治疗选择应由他们报销。