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为什么躯体化视角下的肌痛性脑脊髓炎/慢性疲劳综合征与当前证据不一致,且对患者有害。

Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients.

机构信息

German Association for ME/CFS, 20146 Hamburg, Germany.

Research Center CATALPA, FernUniversität in Hagen, 58097 Hagen, Germany.

出版信息

Medicina (Kaunas). 2023 Dec 31;60(1):83. doi: 10.3390/medicina60010083.

DOI:10.3390/medicina60010083
PMID:38256344
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10819994/
Abstract

Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients with ME/CFS, and the majority of researchers to date classify the disease as organic, many physicians still believe that ME/CFS is a psychosomatic illness. In this article, we show how detrimental this belief is to the care and well-being of affected patients and, as a consequence, how important the education of physicians and the public is to stop misdiagnosis, mistreatment, and stigmatization on the grounds of incorrect psychosomatic attributions about the etiology and clinical course of ME/CFS.

摘要

自 1969 年以来,世界卫生组织(WHO)将肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)归类为一种神经系统疾病。尽管随着时间的推移,大量研究已经发现 ME/CFS 患者存在器官异常,而且迄今为止大多数研究人员将该疾病归类为器质性疾病,但许多医生仍然认为 ME/CFS 是一种心身疾病。在本文中,我们将展示这种信念对受影响患者的护理和福祉有何危害,以及因此对医生和公众进行教育以阻止基于对 ME/CFS 的病因和临床过程的不正确的心身归因而导致误诊、不当治疗和污名化的重要性。

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Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients.为什么躯体化视角下的肌痛性脑脊髓炎/慢性疲劳综合征与当前证据不一致,且对患者有害。
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本文引用的文献

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Worsening Symptoms Is Associated with Larger Cerebral Blood Flow Abnormalities during Tilt-Testing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).在肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)的倾斜试验中,症状恶化与更大的大脑血流异常相关。
Medicina (Kaunas). 2023 Dec 12;59(12):2153. doi: 10.3390/medicina59122153.
2
[Implications of the quality of the doctor-patient relationship on health in adult ME/CFS patients. A qualitative public health study from a patien perspective].[医患关系质量对成年肌痛性脑脊髓炎/慢性疲劳综合征患者健康的影响。一项从患者视角出发的定性公共卫生研究]
MMW Fortschr Med. 2023 Dec;165(Suppl 5):16-27. doi: 10.1007/s15006-023-2894-z.
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Typing myalgic encephalomyelitis by infection at onset: A DecodeME study.发病时因感染引发的肌痛性脑脊髓炎分型:一项解码ME研究
NIHR Open Res. 2023 Aug 21;3:20. doi: 10.3310/nihropenres.13421.4. eCollection 2023.
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A scoping review of 'Pacing' for management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): lessons learned for the long COVID pandemic.肌痛性脑脊髓炎/慢性疲劳综合征 (ME/CFS) 管理中“起搏”的范围综述:对长新冠大流行的经验教训。
J Transl Med. 2023 Oct 14;21(1):720. doi: 10.1186/s12967-023-04587-5.
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Evaluation of a Webinar to Increase Health Professionals' Knowledge about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).评估一场旨在提高卫生专业人员对肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)认识的网络研讨会。
Healthcare (Basel). 2023 Aug 2;11(15):2186. doi: 10.3390/healthcare11152186.
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Characterizing Sjögren-Associated Fatigue: A Distinct Phenotype from ME/CFS.表征干燥综合征相关疲劳:一种与肌痛性脑脊髓炎/慢性疲劳综合征不同的表型。
J Clin Med. 2023 Jul 29;12(15):4994. doi: 10.3390/jcm12154994.
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Orthostatic chronotropic incompetence in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).肌痛性脑脊髓炎/慢性疲劳综合征(ME/CFS)患者的直立性变时性功能不全。
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Sensors (Basel). 2023 Jun 4;23(11):5330. doi: 10.3390/s23115330.
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