End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB) & Ghent University, Brussels, Belgium; Department of Family Medicine and Chronic Care, Vrije Universiteit Brussel (VUB), Brussel, Belgium.
Human Factors Research Group, Faculty of Engineering, University of Nottingham, Nottingham, UK; NIHR MindTech MedTech Co-operative, Institute of Mental Health, University of Nottingham, Nottingham, UK.
Int J Med Inform. 2024 Aug;188:105484. doi: 10.1016/j.ijmedinf.2024.105484. Epub 2024 May 15.
There is an increased number of web-based tools designed for people with dementia and their family caregivers and addressing communication and decision-making. The loss of cognitive functions associated with dementia can impact individuals' experiences and use of web-based tools. There is a need for high quality and user-friendly web-based tools that support communication and decision-making for people with dementia and their family caregivers.
To identify usability requirements, usability testing methods, and design suggestions from studies focusing on web-based tools for communication and decision-making support in dementia care.
We conducted a systematic review with narrative synthesis. Five databases were systematically searched in February 2023. The quality of the included studies was assessed using the Mixed Methods Appraisal Tool.
A total of 1,032 articles were identified and 7 fulfilled inclusion criteria. Web-based tools addressed technology usage, health promotion, home modification information, shared decision-making facilitation, information needs and social isolation. Methods to test usability included surveys, interviews, focus groups, cognitive walkthroughs and think-aloud procedures. Findings suggested reducing cognitive load, enhancing readability, providing clear language, and emphasising the need for additional support for people with dementia. Design recommendations include optimising information delivery and presentation, enhancing visual elements, streamlining navigation, providing concrete examples, using clear language, and offering training and tailored support.
Usability requirements ranged from visual appearance and navigation to delivery of content and support needed. This review contributes to efforts to improve design and development of web-based tools targeting communication and decision-making in dementia care. Further research should address tailored support to enhance usability for people with dementia.
有越来越多的基于网络的工具是为痴呆症患者及其家庭照顾者设计的，用于解决沟通和决策问题。与痴呆症相关的认知功能丧失会影响个人对基于网络工具的体验和使用。需要高质量且用户友好的基于网络的工具，为痴呆症患者及其家庭照顾者提供沟通和决策支持。
确定专门用于痴呆症护理中沟通和决策支持的基于网络的工具的研究中可用性需求、可用性测试方法和设计建议。
我们进行了系统综述和叙述性综合。于 2023 年 2 月在五个数据库中进行了系统搜索。使用混合方法评估工具评估纳入研究的质量。
共确定了 1032 篇文章，其中 7 篇符合纳入标准。基于网络的工具涉及技术使用、健康促进、家庭改造信息、共同决策促进、信息需求和社会隔离。测试可用性的方法包括调查、访谈、焦点小组、认知走查和出声思维程序。研究结果表明，需要减少认知负荷、提高可读性、使用清晰的语言，并强调为痴呆症患者提供额外的支持。设计建议包括优化信息传递和呈现、增强视觉元素、简化导航、提供具体示例、使用清晰的语言，并提供培训和个性化支持。
可用性需求从视觉外观和导航到内容传递和所需支持各不相同。本综述有助于努力改善针对痴呆症护理中的沟通和决策的基于网络的工具的设计和开发。进一步的研究应针对定制支持，以提高痴呆症患者的可用性。
