Nicmanis Mitchell, Holmes Joshua, Oxlad Melissa, Chur-Hansen Anna
School of Psychology, Faculty of Health and Medical Sciences, The University of Adelaide, Level 5, Hughes Building North Terrace Campus, Adelaide, SA, 5000, Australia.
School of Computer and Mathematical Sciences, Faculty of Sciences, Engineering and Technology, The University of Adelaide, Adelaide, SA, Australia.
J Clin Psychol Med Settings. 2025 Mar;32(1):121-130. doi: 10.1007/s10880-024-10024-6. Epub 2024 May 21.
The decision to receive a cardiac implantable electronic device (CIED) represents a challenging experience for patients. However, the majority of previous research has only considered retrospective accounts of patient experiences. This study aimed to use social media data to characterize the information sought by people anticipating or considering CIED implantation and factors that influence their decision-making experiences. A Python-based script was used to collect posts made to a community intended for discussions concerning CIEDs on the social media platform Reddit. Reflexive content analysis was used to analyze the collected data. From 799 posts collected, 101 made by 86 participants were analyzed. The reported median (range) age of participants was 34 (16-67), and most were anticipating or considering a pacemaker. Three overarching categories classified the data: "Use of social media to meet informational and other needs"; "Factors influencing acceptance of the need for implantation"; and "Specific concerns considered during decision-making." Participants anticipating or considering a CIED predominantly sought experiential information. Among asymptomatic participants, doubts were prevalent, with acceptance being an influential factor in decision-making. Healthcare professionals should recognize the informational and emotional needs of prospective CIED patients and tailor support mechanisms to better facilitate their decision-making.
对于患者而言,决定接受心脏植入式电子设备(CIED)是一次具有挑战性的经历。然而,以往的大多数研究仅考虑了对患者经历的回顾性描述。本研究旨在利用社交媒体数据来描述预期或考虑植入CIED的人群所寻求的信息,以及影响他们决策体验的因素。使用基于Python的脚本收集在社交媒体平台Reddit上一个旨在讨论CIED的社区中发布的帖子。采用反思性内容分析法对收集到的数据进行分析。从收集到的799篇帖子中,分析了86名参与者发布的101篇帖子。参与者报告的年龄中位数(范围)为34岁(16 - 67岁),大多数人预期或考虑植入起搏器。数据分为三大类:“利用社交媒体满足信息及其他需求”;“影响接受植入需求的因素”;以及“决策过程中考虑的具体担忧”。预期或考虑植入CIED的参与者主要寻求经验性信息。在无症状参与者中,疑虑普遍存在,接受程度是决策的一个影响因素。医疗保健专业人员应认识到未来CIED患者的信息和情感需求,并调整支持机制,以更好地促进他们的决策。