Nursing and Healthcare, School of Medicine, Dentistry & Nursing, University of Glasgow, Glasgow, UK.
NHS Greater Glasgow & Clyde, Glasgow, UK.
J Adv Nurs. 2022 Jan;78(1):187-200. doi: 10.1111/jan.15009. Epub 2021 Aug 9.
To examine the accuracy of diagnostic responses and types of information provided on online health forums.
Qualitative descriptive study.
This paper reports the findings of a thematic analysis of peer responses to posts included on heart failure online health forums, to understand the quality and types of information provided. Responses posted between March 2016 and March 2019 were screened, collected and analysed thematically using Braun & Clarke. Themes were conceptually underpinned by Normalization Process Theory. Responses were assessed for quality against the NICE and SIGN guidelines to determine whether they were evidence based or not.
The total number of responses collected for analysis was 639. Five main themes were identified: diagnostic, experiential, informational, peer relations and relationships with healthcare professionals. Out of 298 diagnostic responses, 5% were guideline evidence-based and 6% had information that were partly evidence-based. Non-evidence based and potentially dangerous responses were 10%. Experiential responses were 10%; 23% included advice that was not supported with any clinical evidence; and 46% signposted users to other online references/healthcare professionals.
Online health communication largely focuses on provision of experiential responses to assist those in need of pre- or post-diagnosis advice and support. However, there is evidence of inaccurate information provision which suggests the use of a moderator would be beneficial.
This study suggests heart failure online health forums are a source of support, however, there are potential risks. Increasing nurses and other health care professional's awareness of online health forums will be important. Additional training is needed to help them learn more about patient's use of online health forums, to gain a better understanding about the types of information sought, and how best to address such knowledge deficits. Healthcare systems must ensure sufficient time and resources are available to meet information needs for people with heart failure.
研究在线健康论坛上诊断回复的准确性和提供信息的类型。
定性描述性研究。
本文报告了对心力衰竭在线健康论坛上发布的帖子的同行回复进行主题分析的结果，以了解提供的信息质量和类型。对 2016 年 3 月至 2019 年 3 月期间发布的回复进行筛选、收集，并使用 Braun & Clarke 进行主题分析。主题由正常化过程理论概念支撑。根据 NICE 和 SIGN 指南评估回复的质量，以确定它们是否基于证据。
共收集了 639 条回复进行分析。确定了 5 个主要主题：诊断、经验、信息、同伴关系和与医疗保健专业人员的关系。在 298 条诊断回复中，5%是基于指南的证据，6%的信息部分基于证据。非基于证据和潜在危险的回复为 10%。经验回复占 10%；23%的回复包含没有临床证据支持的建议；46%的回复将用户引导至其他在线参考资料/医疗保健专业人员。
在线健康交流主要侧重于提供经验性回复，以帮助那些需要诊断前或诊断后建议和支持的人。然而，有证据表明存在不准确的信息提供，这表明使用主持人会很有帮助。
这项研究表明，心力衰竭在线健康论坛是支持的来源，但也存在潜在风险。提高护士和其他医疗保健专业人员对在线健康论坛的认识将非常重要。需要额外的培训，以帮助他们更多地了解患者对在线健康论坛的使用情况，更好地了解所寻求的信息类型，并了解如何最好地解决这些知识缺陷。医疗保健系统必须确保有足够的时间和资源来满足心力衰竭患者的信息需求。
