Istinye University Faculty of Health Sciences, Nursing Department, Istanbul, Turkey.
Atlas University Faculty of Health Sciences, Nursing Department, Istanbul, Turkey.
J Pediatr Nurs. 2024 Jul-Aug;77:e593-e601. doi: 10.1016/j.pedn.2024.05.026. Epub 2024 May 25.
As treatment increasingly shifts from hospital settings to home environments, the burden on caregivers of chronic kidney disease patients has the potential to increase further. It is essential to assess the experience and burdens of caregivers of children with chronic kidney disease to identify caregivers' needs and provide targeted interventions when necessary. Hence, this study aimed to assess the psychometric properties of the Turkish version of the Pediatric Renal Caregiver Burden Scale (PR-CBS).
This methodological study involved 215 parents with children aged 5-18 and was conducted between December 5, 2021, and August 15, 2022. The Content Validity Index, Explanatory and Confirmatory Factor Analyses, Cronbach's alpha, Test-retest reliability, and item-total score correlation were used in the data analysis. The Turkish version of PR-CBS test-retest reliability analysis was performed with 30 parents after four weeks.
PR-CBS consists of 20 items and five sub-dimensions (illness worries, impact on self, impact on child, responsibility, institutional burden). The Turkish version of the PR-CBS and its five dimensions demonstrated satisfactory internal consistency and reliability. The construct validity of the Turkish version of the PR-CBS was confirmed by Explanatory Factor Analyses and was validated with Confirmatory Factor Analysis.
PR-CBS is a valid and reliable tool to assess the burden of caregivers of children with chronic kidney disease in Turkish society.
By assessing the care burden of families, pediatric nurses can enhance the opportunity to provide quality care and support to caregivers and their patients.
随着治疗逐渐从医院环境转移到家庭环境，慢性肾脏病患者的照顾者的负担有可能进一步增加。评估慢性肾脏病儿童照顾者的经验和负担至关重要，以便确定照顾者的需求并在必要时提供有针对性的干预措施。因此，本研究旨在评估土耳其版儿科肾脏照顾者负担量表（PR-CBS）的心理测量特性。
本方法学研究纳入了 215 名年龄在 5-18 岁之间的儿童的父母，研究时间为 2021 年 12 月 5 日至 2022 年 8 月 15 日。内容效度指数、解释性和验证性因子分析、克朗巴赫 α 系数、测试-重测信度和项目-总分相关性用于数据分析。土耳其版 PR-CBS 的测试-重测信度分析在四周后对 30 名父母进行。
PR-CBS 由 20 个项目和五个子维度（疾病担忧、对自身的影响、对孩子的影响、责任、机构负担）组成。土耳其版 PR-CBS 及其五个维度表现出令人满意的内部一致性和可靠性。土耳其版 PR-CBS 的结构有效性通过解释性因子分析得到确认，并通过验证性因子分析进行验证。
PR-CBS 是一种在土耳其社会评估慢性肾脏病儿童照顾者负担的有效且可靠的工具。
通过评估家庭的护理负担，儿科护士可以有更多机会为照顾者及其患者提供优质的护理和支持。
