Debie V H J, Boymans T A E J, Ottenheijm R P G, van Schayck O C P, Gidding-Slok A H M
Department of Family Medicine, Care and Public Health Research Institute (CAPHRI), Maastricht University, Maastricht, the Netherlands.
Department of Orthopedic Surgery, Care and Public Health Research Institute (CAPHRI), Maastricht University Medical Center, Maastricht, the Netherlands.
Osteoarthr Cartil Open. 2024 May 15;6(3):100488. doi: 10.1016/j.ocarto.2024.100488. eCollection 2024 Sep.
Osteoarthritis (OA) care should be more person-centered based on physical, emotional and social aspects, instead of the current stepped-care approach solely based on physical symptoms, according to OA patients. By developing a novel module for OA in the Assessment of Burden of Chronic Condition (ABCC)-tool, a tool based on these three aspects, experienced quality of OA care and shared-decision making are expected to improve.
The development of the novel OA module involved a triangular iterative process, interviewing OA patients and healthcare professionals in the field of OA, an expert panel and a literature search to identify the needs to improve OA care. Patients provided feedback on the first version of the OA module, leading to a second version. This second version was used to evaluate content validity. OA patients and healthcare professionals in the field of OA were asked to evaluate relevance, comprehensiveness and comprehensibility, based on the COSMIN methodology. For healthcare professionals, the item-content validity index (I-CVI) was calculated.
The module includes questions about pain, kinesiophobia and joint stiffness. For all three questions, 94% of the patients found these questions important for patients with OA. The I-CVI scores of the healthcare professionals ranged from 1.0 (pain, kinesiophobia) to 0.75 (joint stiffness).
A novel, condition-specific OA module is developed for the ABCC-tool, as a supplement to the generic questions. The module includes three questions, to measure OA specific complaints. This novel module is intended to make the ABCC-tool more elaborate and useable for a larger population.
骨关节炎(OA)患者认为,OA护理应更多地基于身体、情感和社会层面,以患者为中心,而非目前仅基于身体症状的阶梯式护理方法。通过在慢性病负担评估(ABCC)工具中开发一个针对OA的全新模块(该工具基于上述三个方面),有望改善OA护理的体验质量和共同决策。
新型OA模块的开发涉及一个三角迭代过程,即采访OA患者和OA领域的医疗专业人员、一个专家小组并进行文献检索,以确定改善OA护理的需求。患者对OA模块的第一版提供反馈,从而产生第二版。该第二版用于评估内容效度。根据COSMIN方法,邀请OA患者和OA领域的医疗专业人员评估相关性、全面性和可理解性。对于医疗专业人员,计算条目内容效度指数(I-CVI)。
该模块包括有关疼痛、运动恐惧和关节僵硬的问题。对于所有这三个问题,94%的患者认为这些问题对OA患者很重要。医疗专业人员的I-CVI分数范围为1.0(疼痛、运动恐惧)至0.75(关节僵硬)。
为ABCC工具开发了一个全新的、针对特定疾病的OA模块,作为通用问题的补充。该模块包括三个问题,用于测量OA的特定症状。这个全新的模块旨在使ABCC工具更详尽,适用于更多人群。