Yavari Bryan, Kolbehdari Nilofar, Gann Lindsay, Portillo Mercedes, Rumschlag Alexandria, Aldridge Melanie, Mellon Walker, Alcaraz Gissel Marquez, Richker Harley, Sarkissian Mané, Compton Zachary T, Aktipis Athena, Maley Carlo, Baciu Cristina
Arizona Cancer Evolution Center.
Biodesign Institute, Arizona State University.
medRxiv. 2024 Sep 23:2024.05.20.24307517. doi: 10.1101/2024.05.20.24307517.
Cancer, one of the leading causes of death worldwide, is a disease characterized by uncontrolled cell growth within the body. While there have been many improvements in the treatment of cancer clinically, there is now an urgent need to improve cancer-related communication. This study explores the impact of online health information, specifically cancer-related information and prevention, among members of the general public. Through a randomized survey, we examined what information leads people to take action to minimize their cancer risk and communicate with their providers. Through evaluation of the various modes of communication, we were able to provide insight into which are more effective and better received by members of the general public. Through this, ways of bettering these avenues of communication and strengthening the bond between them will be highlighted and more easily elaborated on by future studies. The results of our study indicated that 60% of participants asserted that they are motivated by online preventive information to take steps to limit their cancer risk, while only roughly 44% of participants overall agreed that their doctor has communicated with them about when proper cancer screenings should be scheduled for the future. Although patients may be turning to the Internet now more than ever due to various reasons, when comparing self-reported rates of comprehension among the study participants, 35% agreed that the cancer-related information they can access online is confusing, while fewer than 22% of participants agreed that the cancer-related information they receive directly from their doctor is confusing. This is indicative of the limitations the Internet may have when undertaking the role of being a medical resource, especially when acting as a replacement for in-person medical appointments where patients can communicate directly with their physicians. Ultimately, these results provide a unique perspective into how people receive, evaluate, and implement cancer-preventive steps and general health-related information in a post-COVID-19 world, where the Internet is now strongly embedded in healthcare.
癌症是全球主要死因之一,是一种以体内细胞不受控制地生长为特征的疾病。虽然临床上癌症治疗已有许多进展,但现在迫切需要改善与癌症相关的沟通。本研究探讨在线健康信息,特别是与癌症相关的信息和预防措施,对普通公众的影响。通过一项随机调查,我们研究了哪些信息能促使人们采取行动将癌症风险降至最低,并与医疗服务提供者沟通。通过评估各种沟通方式,我们能够深入了解哪些方式对普通公众更有效且更易被接受。由此,未来研究将更易于阐明并突出改善这些沟通渠道及加强它们之间联系的方法。我们的研究结果表明,60%的参与者称他们受到在线预防信息的激励,采取措施限制癌症风险,而总体上只有约44%的参与者同意他们的医生已与他们沟通了未来应何时安排适当的癌症筛查。尽管由于各种原因,患者现在可能比以往任何时候都更依赖互联网,但比较研究参与者自我报告的理解率时,35%的人认为他们在网上获取的癌症相关信息令人困惑,而只有不到22%的参与者认为他们直接从医生那里获得的癌症相关信息令人困惑。这表明互联网在充当医疗资源角色时可能存在的局限性,尤其是在替代患者可直接与医生沟通的面对面医疗预约时。最终,这些结果为人们在新冠疫情后的世界中如何接收、评估和实施癌症预防措施及一般健康相关信息提供了独特视角,在这个世界里,互联网已深深融入医疗保健领域。