Söhner F, Rolfes V, Hofmann W, Zerres K, Fangerau H, Krischel M
Institut für Geschichte, Theorie und Ethik der Medizin Centre for Health and Society, Medizinische Fakultät Heinrich-Heine-Universität Düsseldorf, Moorenstraße 5, 40225 Düsseldorf, Deutschland.
MVZ genetikum® GmbH. Genetische Beratung & Diagnostik, Lautenschlagerstr. 23, 70173 Stuttgart, Deutschland.
Med Genet. 2022 Sep 22;34(3):233-239. doi: 10.1515/medgen-2022-2148. eCollection 2022 Oct.
In this article we describe and analyse the issue of non-directivity in human genetic counselling in Germany between 1970 and 2010 based on printed sources and oral history interviews. The focus is on the extent to which the ethical aspects in genetic counselling were debated among human geneticists and to what extent aspects of non-directivity were discussed.As the results show, it was not only in retrospect that experts attributed great importance to the autonomy of those seeking advice and rejected "directive" advice, at least in public positions. They considered ethical justification to be central here.
在本文中,我们基于印刷资料和口述历史访谈,描述并分析了1970年至2010年间德国人类遗传咨询中的非指导性问题。重点在于人类遗传学家对遗传咨询中伦理方面的辩论程度,以及非指导性方面的讨论程度。结果表明,至少在公开立场上,专家们不仅在回顾时高度重视咨询者的自主权并拒绝“指导性”建议。他们认为伦理依据在此至关重要。