Marteau T, Drake H, Bobrow M
Psychology and Genetics Research Group, UMDS, London, UK.
J Med Genet. 1994 Nov;31(11):864-7. doi: 10.1136/jmg.31.11.864.
Women receiving a positive diagnosis of an abnormality during pregnancy may be counselled about a termination by one of several types of health professionals including obstetricians, geneticists, and genetic nurses. There is anecdotal evidence to suggest that these groups differ in both their approaches to counselling and their attitudes towards abnormality. The aim of the current study is to document how genetic nurses, geneticists, and obstetricians describe their own counselling of women following the diagnosis of specific fetal abnormalities. Obstetricians reported counselling in a significantly more directive fashion than did geneticists, who in turn reported counselling in a more directive way than did genetic nurses. The extent to which the groups differed in their reported approaches varied across conditions. The most marked difference was evident for Down's syndrome: 94% of genetic nurses, 57% of geneticists, and 32% of obstetricians reported counselling non-directively. Future research needs to focus on what these different groups see as the objectives of counselling in this situation, how they actually counsel, and with what effects.
在孕期被诊断出异常结果呈阳性的女性，可能会由包括产科医生、遗传学家和遗传护士在内的几种类型的医疗专业人员之一，就终止妊娠事宜提供咨询。有坊间证据表明，这些群体在咨询方式和对异常情况的态度上都存在差异。本研究的目的是记录遗传护士、遗传学家和产科医生在诊断出特定胎儿异常后，如何描述他们对女性的咨询过程。产科医生报告的咨询方式比遗传学家更为直接，而遗传学家报告的咨询方式又比遗传护士更为直接。这些群体在报告的咨询方式上的差异程度因情况而异。唐氏综合征的差异最为明显：94%的遗传护士、57%的遗传学家和32%的产科医生报告采用非直接咨询方式。未来的研究需要关注这些不同群体在此种情况下认为咨询的目标是什么、他们实际如何进行咨询以及会产生什么效果。
