Crul T C, Hacking E C, Visser-Meily J M A, Post M W M, Stolwijk-Swüste J M
Centre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
Department of Rehabilitation, Physical Therapy Science & Sports, UMC Utrecht Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.
Disabil Rehabil. 2025 Feb;47(4):985-991. doi: 10.1080/09638288.2024.2362402. Epub 2024 Jun 5.
The aims of this study were to explore (1) the considerations of people with spinal cord injury (SCI) in choosing to use non-pharmacological treatments (N-PTs) for neuropathic pain (NP), (2) which factors influence their decision and who is involved in this choice.
Eleven individuals with SCI and NP were interviewed. Interviews were transcribed verbatim, transcripts were analysed through thematic coding, following an inductive content analysis approach.
A journey towards finding and choosing N-PTs emerged. Key phases in this journey were: motives, strategy and practical considerations. Pain and its impact on their life led participants to consider N-PTs. Motives were participants' negative attitudes towards regular medication, willingness to try everything and disappointment and frustration with the guidance from their health care provider (HCP). The search strategies often involved third parties and the internet. This led them to choose a specific N-PT. The journey was influenced by one's attitude, previous personal experience, experience of HCPs, financial considerations, availability and convenience of the treatment.
The journey individuals with SCI and NP go through to find N-PTs to manage pain is difficult and often lonely. Findings highlight the importance of HCPs accompanying people with SCI in finding N-PTs.
本研究旨在探讨：（1）脊髓损伤（SCI）患者选择使用非药物治疗（N-PT）来缓解神经性疼痛（NP）的考量因素；（2）哪些因素影响他们的决策以及谁参与了这一选择过程。
对11名患有SCI和NP的患者进行了访谈。访谈内容逐字记录，采用归纳性内容分析法，通过主题编码对记录文本进行分析。
呈现出一个寻找和选择N-PT的过程。这一过程的关键阶段包括：动机、策略和实际考量。疼痛及其对生活的影响促使参与者考虑采用N-PT。动机包括参与者对常规药物的消极态度、尝试一切的意愿以及对医疗保健提供者（HCP）指导的失望和沮丧。搜索策略通常涉及第三方和互联网。这促使他们选择了一种特定的N-PT。这一过程受到个人态度、既往个人经历、HCP的经验、经济考量、治疗的可及性和便利性的影响。
患有SCI和NP的患者寻找N-PT来缓解疼痛的过程艰难且往往孤独。研究结果凸显了HCP陪伴SCI患者寻找N-PT的重要性。
