Shibano Yuko, Morioka Noriko, Kashiwagi Masayo
Department of Medical Welfare, Faculty of Medical Sciences, Teikyo University of Science.
Graduate School of Health Care Sciences, Tokyo Medical and Dental University.
Nihon Koshu Eisei Zasshi. 2024 Aug 20;71(8):391-407. doi: 10.11236/jph.23-106. Epub 2024 Jun 13.
Objective This scoping review aimed to provide an overview of collaborative practices for children with medical complexities and their families by life stage.Methods This scoping review was conducted based on the JBI scoping review manual using the PubMed, CINAHL, and Medical Journal databases. Search terms included "collaboration," "intersectoral collaboration," "children with medical complexity," and "children with special healthcare needs," whereas control words included "children with special healthcare needs," "children with medical care," "children with severe mental and physical disabilities," and "children with severe mental and physical disabilities." The inclusion criteria were articles in Japan that reported on practices for children (aged 0-18 years) with medical care needs and collaboration among other multiple professions, research articles, excluding review and protocol articles, and English or Japanese articles. For the analysis, collaboration-related practices were extracted from selected papers, categorized based on similarities in content, and further summarized according to the life stage. Three researchers discussed the selection of papers, data extraction, and analysis until a consensus was reached.Results The analysis included 30 papers (27 Japanese and three English papers). Regarding publication year, 14 papers were published within the last 3 years. Additionally, 19 case and 26 practice reports and 11 studies (quantitative research; one, qualitative research; 10) were published by professionals. Regarding collaborative practices, 160 cases were extracted and classified into nine. In "discharge support," practices in all subcategories were reported for preschoolers, whereas only two of the five subcategories were reported for school-aged children. Contrastingly, in the "maintenance phase in preschool, daycare, and school," preschoolers reported practices in two of the seven subcategories. Additionally, various professionals from the fields of medicine, welfare, education, and administration were involved in the collaboration.Conclusion There were differences in the reporting of collaborative practices at each life stage. Although numerous professionals were involved, reports of collaborative practices among them were unevenly distributed. Eventually, it will be necessary to investigate the nature of collaborative practices among various professionals, focusing on children and their families.
目的 本范围综述旨在按生命阶段概述患有复杂疾病的儿童及其家庭的协作实践。
方法 本范围综述依据JBI范围综述手册，使用PubMed、CINAHL和医学期刊数据库进行。检索词包括“协作”“跨部门协作”“患有复杂疾病的儿童”和“有特殊医疗需求的儿童”，而控制词包括“有特殊医疗需求的儿童”“接受医疗护理的儿童”“患有严重身心残疾的儿童”以及“患有严重身心残疾的儿童”。纳入标准为在日本发表的、报告了针对有医疗护理需求的儿童（0至18岁）的实践以及其他多个专业之间协作情况的文章、研究论文（不包括综述和方案文章），以及英文或日文文章。为进行分析，从选定论文中提取与协作相关的实践，根据内容相似性进行分类，并进一步按生命阶段进行总结。三位研究人员讨论论文的选择、数据提取和分析，直至达成共识。
结果 分析纳入30篇论文（27篇日文论文和3篇英文论文）。关于发表年份，14篇论文是在过去3年内发表的。此外，由专业人员发表了19篇案例和26篇实践报告以及11项研究（定量研究1项，定性研究10项）。关于协作实践，提取了160个案例并分为九类。在“出院支持”方面，学龄前儿童的所有子类别都有实践报告，而学龄儿童仅报告了五个子类别中的两个。相反，在“学龄前、日托和学校的维持阶段”，学龄前儿童报告了七个子类别中的两个实践。此外，医学、福利、教育和行政领域的各种专业人员参与了协作。
结论 每个生命阶段的协作实践报告存在差异。尽管有众多专业人员参与，但他们之间协作实践的报告分布不均衡。最终，有必要关注儿童及其家庭，研究各专业人员之间协作实践的性质。
