Boston University Chobanian & Avedisian School of Medicine and Boston Medical Center, Section of Nephrology, Boston, Massachusetts.
Department of General Internal Medicine, University of Colorado, Anschutz Campus, Aurora, Colorado, USA.
Curr Opin Nephrol Hypertens. 2024 Nov 1;33(6):647-651. doi: 10.1097/MNH.0000000000001005. Epub 2024 Jun 14.
Inequities in kidney disease are a result of differences in healthcare access and inequitable structural policies that lead to downstream social challenges. An individual with kidney disease sits at the intersection of a variety of governmental and institutional policies that directly affect their access to kidney healthcare and different care delivery models. However, their voice in policy change is often neglected by stakeholders with more structural power. Marginalized individuals with kidney disease are disproportionately affected by kidney disease and inequitable policies can further these health disparities. The review aims to describe how marginalized individuals can be centered in research and lead in advocacy efforts to promote equitable policy change.
The marginalized patient voice is critical in advocacy to promote equitable policy change. We discuss examples illustrating research and advocacy methods which center and partner with marginalized communities to catalyze effective policy interventions.
Centralizing the patient voice when engaging in advocacy can identify and contextualize the effects of inequitable public policy and improve advocacy efforts.
目的综述：肾脏疾病的不平等是医疗保健获取方面的差异以及导致下游社会挑战的不公平结构性政策的结果。患有肾脏疾病的个体处于各种政府和机构政策的交叉点，这些政策直接影响他们获得肾脏保健和不同的护理提供模式的机会。然而，他们在政策变革中的声音往往被拥有更多结构性权力的利益相关者忽视。患有肾脏疾病的边缘人群受到肾脏疾病和不平等政策的不成比例的影响，这些政策会进一步加剧这些健康差距。本综述旨在描述如何将边缘化个体置于研究的中心，并在倡导工作中发挥领导作用，以促进公平的政策变革。
最新发现：边缘化患者的声音在倡导促进公平政策变革方面至关重要。我们讨论了一些例子，这些例子说明了将边缘化社区置于中心并与之合作的研究和倡导方法，以促进有效的政策干预。
总结：在倡导工作中，将患者的声音置于中心位置可以识别和背景化不公平公共政策的影响，并改善倡导工作。
