Department for Pediatric and Adolescent Medicine, The Juliane Marie Center, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark; Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark.
Department for Pediatric and Adolescent Medicine, The Juliane Marie Center, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.
Eur J Oncol Nurs. 2024 Aug;71:102639. doi: 10.1016/j.ejon.2024.102639. Epub 2024 Jun 7.
Preschool children receiving cancer treatment experience decreased gross motor function and challenges in personal and social development. For preschoolers, parents are critical for their child's cancer treatment trajectory, including their participation in physical activity. This study aimed to explore the parents' experiences with a novel rehabilitation intervention, including structured active play for preschoolers with cancer during treatment.
Through criterion sampling, 23 parents of 18 preschool children diagnosed with cancer were interviewed from August 2021 until April 2023. A hermeneutic-phenomenological-inspired inductive thematic analysis was performed.
Based on 19 interviews with parents, three themes emerged: 1) pushing in the right direction, 2) sharing the responsibility, and 3) creating joyful experiences. The parents experienced that participation in the intervention resulted in physical progress for their child, and the child generally could develop personally and socially. The parents shared a common goal with a healthcare professional, who led the way in their child's physical development and gave them the space to participate with their child. The child actively chose to participate in structured active play, resulting in an altered perception of the hospital experience for both parents and children.
The parents' experiences showed that with the support, knowledge, and expertise of an exercise professional, rehabilitation including structured active play can be a way to integrate movement and physical activity for preschoolers in their cancer treatment trajectory. The repetitive structure of the active play sessions was experienced as motivating for the children and simultaneously challenging their physical, social, and personal development.
ClinicalTrials.gov: NCT04672681. Registered December 17, 2020. https://clinicaltrials.gov/ct2/show/NCT04672681.
接受癌症治疗的学龄前儿童的粗大运动功能会下降，并且在个人和社会发展方面也会面临挑战。对于学龄前儿童来说，父母是其癌症治疗轨迹的关键，包括他们参与体育活动的情况。本研究旨在探索父母对一种新的康复干预措施的体验，包括在癌症治疗期间为患有癌症的学龄前儿童提供结构化的积极游戏。
通过标准抽样，从 2021 年 8 月至 2023 年 4 月，对 18 名被诊断患有癌症的学龄前儿童的 23 位父母进行了访谈。采用解释现象学启发式的归纳主题分析方法。
基于对 19 位父母的访谈，得出了三个主题：1）朝着正确的方向推动，2）分担责任，3）创造快乐体验。父母们体验到，参与干预措施使孩子在身体上取得了进步，孩子通常可以在个人和社会方面得到发展。父母与医疗保健专业人员有共同的目标，该专业人员引领孩子的身体发展，并为他们提供与孩子一起参与的空间。孩子积极选择参与结构化的积极游戏，这使父母和孩子对医院体验有了不同的看法。
父母的经验表明，在运动专业人员的支持、知识和专业技能的帮助下，包括结构化积极游戏在内的康复可以成为将运动和体育活动融入学龄前儿童癌症治疗轨迹的一种方式。积极游戏课程的重复结构被体验为对孩子具有激励作用，同时也挑战了他们的身体、社会和个人发展。
ClinicalTrials.gov：NCT04672681。于 2020 年 12 月 17 日注册。https://clinicaltrials.gov/ct2/show/NCT04672681。
