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支气管扩张症患儿及其父母在一项基于游戏的新型治疗性锻炼计划中的体验:一项定性分析

Experiences of children with bronchiectasis and their parents in a novel play-based therapeutic exercise programme: a qualitative analysis.

作者信息

Jones Taryn, Baque Emmah, O'Grady Kerry-Ann, Kohler Brooke E, Goyal Vikas, McCallum Gabrielle B, Chang Anne, Trost Stewart

机构信息

Queensland University of Technology, Brisbane, Queensland, Australia.

Griffith University, Nathan, Queensland, Australia.

出版信息

BMJ Open. 2024 Jul 31;14(7):e078994. doi: 10.1136/bmjopen-2023-078994.

Abstract

OBJECTIVES

To explore the experiences and perceptions of children with bronchiectasis and their parents regarding an 8-week play-based therapeutic exercise programme.

DESIGN

Qualitative study with inductive content analysis.

SETTING

Individual semistructured interviews were conducted. Interview recordings were transcribed verbatim, and coding was guided by the content. Content categories were established via consensus moderation.

PARTICIPANTS

10 parents and 10 children with bronchiectasis aged 5-12 years.

RESULTS

From the perspective of children, the most important components of the programme were fun with friends and being active at home as a family. Parents valued the community-based sessions, perceived the programme to be engaging and motivating. Parents perceived improvements in their child's endurance, coordination and physical activity level. They described the home programme as fun but noted that finding time was difficult. Both parents and children thought that in-person exercise sessions would be better than exercise sessions delivered online.

CONCLUSIONS

Children who participated in the play-based exercise programme, found it fun, motivating and accessible. Parents perceived positive impacts on fitness, coordination and physical activity.

TRIAL REGISTRATION NUMBER

The trial was registered with, Australian and New Zealand Clinical Trials Register (ACTRN12619001008112).

摘要

目的

探讨支气管扩张症患儿及其父母对一项为期8周的基于游戏的治疗性锻炼计划的体验和看法。

设计

采用归纳性内容分析法的定性研究。

背景

进行了个体半结构式访谈。访谈录音逐字转录,编码以内容为导向。通过共识审核确定内容类别。

参与者

10名患有支气管扩张症的5至12岁儿童及其父母。

结果

从儿童的角度来看,该计划最重要的组成部分是与朋友一起玩耍以及在家中与家人一起积极活动。父母重视基于社区的课程,认为该计划具有吸引力且能激发动力。父母察觉到孩子的耐力、协调性和身体活动水平有所改善。他们形容家庭计划有趣,但指出很难抽出时间。父母和孩子都认为面对面的锻炼课程比在线锻炼课程更好。

结论

参与基于游戏的锻炼计划的儿童认为该计划有趣、有激励作用且易于实施。父母察觉到该计划对孩子的健康、协调性和身体活动产生了积极影响。

试验注册号

该试验已在澳大利亚和新西兰临床试验注册中心注册(ACTRN12619001008112)。

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本文引用的文献

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Barriers and facilitators of physical activity in children with bronchiectasis: Perspectives from children and parents.
Front Pediatr. 2022 Oct 5;10:974363. doi: 10.3389/fped.2022.974363. eCollection 2022.
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Investigation of dynamic hyperinflation and its relationship with exercise capacity in children with bronchiectasis.
Pediatr Pulmonol. 2022 Sep;57(9):2218-2226. doi: 10.1002/ppul.26028. Epub 2022 Jun 14.
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