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支气管扩张症患儿及其父母在一项基于游戏的新型治疗性锻炼计划中的体验:一项定性分析

Experiences of children with bronchiectasis and their parents in a novel play-based therapeutic exercise programme: a qualitative analysis.

作者信息

Jones Taryn, Baque Emmah, O'Grady Kerry-Ann, Kohler Brooke E, Goyal Vikas, McCallum Gabrielle B, Chang Anne, Trost Stewart

机构信息

Queensland University of Technology, Brisbane, Queensland, Australia.

Griffith University, Nathan, Queensland, Australia.

出版信息

BMJ Open. 2024 Jul 31;14(7):e078994. doi: 10.1136/bmjopen-2023-078994.

DOI:10.1136/bmjopen-2023-078994
PMID:39089712
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11293381/
Abstract

OBJECTIVES

To explore the experiences and perceptions of children with bronchiectasis and their parents regarding an 8-week play-based therapeutic exercise programme.

DESIGN

Qualitative study with inductive content analysis.

SETTING

Individual semistructured interviews were conducted. Interview recordings were transcribed verbatim, and coding was guided by the content. Content categories were established via consensus moderation.

PARTICIPANTS

10 parents and 10 children with bronchiectasis aged 5-12 years.

RESULTS

From the perspective of children, the most important components of the programme were fun with friends and being active at home as a family. Parents valued the community-based sessions, perceived the programme to be engaging and motivating. Parents perceived improvements in their child's endurance, coordination and physical activity level. They described the home programme as fun but noted that finding time was difficult. Both parents and children thought that in-person exercise sessions would be better than exercise sessions delivered online.

CONCLUSIONS

Children who participated in the play-based exercise programme, found it fun, motivating and accessible. Parents perceived positive impacts on fitness, coordination and physical activity.

TRIAL REGISTRATION NUMBER

The trial was registered with, Australian and New Zealand Clinical Trials Register (ACTRN12619001008112).

摘要

目的

探讨支气管扩张症患儿及其父母对一项为期8周的基于游戏的治疗性锻炼计划的体验和看法。

设计

采用归纳性内容分析法的定性研究。

背景

进行了个体半结构式访谈。访谈录音逐字转录,编码以内容为导向。通过共识审核确定内容类别。

参与者

10名患有支气管扩张症的5至12岁儿童及其父母。

结果

从儿童的角度来看,该计划最重要的组成部分是与朋友一起玩耍以及在家中与家人一起积极活动。父母重视基于社区的课程,认为该计划具有吸引力且能激发动力。父母察觉到孩子的耐力、协调性和身体活动水平有所改善。他们形容家庭计划有趣,但指出很难抽出时间。父母和孩子都认为面对面的锻炼课程比在线锻炼课程更好。

结论

参与基于游戏的锻炼计划的儿童认为该计划有趣、有激励作用且易于实施。父母察觉到该计划对孩子的健康、协调性和身体活动产生了积极影响。

试验注册号

该试验已在澳大利亚和新西兰临床试验注册中心注册(ACTRN12619001008112)。

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本文引用的文献

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Barriers and facilitators of physical activity in children with bronchiectasis: Perspectives from children and parents.支气管扩张症患儿身体活动的障碍与促进因素:来自儿童及其家长的观点
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Effects of a therapeutic exercise program in children with non-cystic fibrosis bronchiectasis: A pilot randomized controlled trial.治疗性运动计划对非囊性纤维化支气管扩张症患儿的影响:一项初步随机对照试验。
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Eur Respir J. 2022 Nov 3;60(5). doi: 10.1183/13993003.00300-2022. Print 2022 Nov.
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Video game-based exercise in children and adolescents with non-cystic fibrosis bronchiectasis: A randomized comparative study of aerobic and breathing exercises.基于视频游戏的运动干预对非囊性纤维化支气管扩张症患儿和青少年的影响:一项有氧运动和呼吸训练的随机对照研究。
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Investigation of dynamic hyperinflation and its relationship with exercise capacity in children with bronchiectasis.支气管扩张症患儿动态过度充气及其与运动能力的关系研究。
Pediatr Pulmonol. 2022 Sep;57(9):2218-2226. doi: 10.1002/ppul.26028. Epub 2022 Jun 14.
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Bronchiectasis - Exercise as Therapy (BREATH): rationale and study protocol for a multi-center randomized controlled trial.支气管扩张症 - 运动治疗(BREATH):一项多中心随机对照试验的原理和研究方案。
Trials. 2022 Apr 11;23(1):292. doi: 10.1186/s13063-022-06256-2.
7
Children's Voices in Physical Activity Research: A Qualitative Review and Synthesis of UK Children's Perspectives.儿童在身体活动研究中的声音:英国儿童观点的定性回顾和综合。
Int J Environ Res Public Health. 2022 Mar 28;19(7):3993. doi: 10.3390/ijerph19073993.
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Bronchiectasis in Childhood.儿童期支气管扩张症
Clin Chest Med. 2022 Mar;43(1):71-88. doi: 10.1016/j.ccm.2021.11.006.
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Diagnosis and Evaluation of Bronchiectasis.支气管扩张症的诊断与评估
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Radiology of Bronchiectasis.支气管扩张症的放射学表现。
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