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与年轻人共同制作健康信息材料:反思与经验教训。

Coproducing Health Information Materials With Young People: Reflections and Lessons Learned.

机构信息

School of Medicine, Keele University, Newcastle-under-Lyme, UK.

Faculty of Health, Social Care and Medicine, Edge Hill, Ormskirk, UK.

出版信息

Health Expect. 2024 Jun;27(3):e14115. doi: 10.1111/hex.14115.

DOI:10.1111/hex.14115
PMID:38879786
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11180295/
Abstract

BACKGROUND

This paper describes and critically reflects on how children and young people (CYP) acted as public advisors to coproduce health information materials about Long Covid for younger audiences. This work was underpinned by the Lundy model, a framework which provides guidance on facilitating CYP to actively contribute to matters which affect them.

METHODS

Coproduction activity sessions took place with CYP in schools as well as video conferences with a CYP stakeholder group and CYP with Long Covid. Activities encouraged CYP to focus on the content, format, and design of materials and used problem-based and collaborative learning to encourage engagement with the project. Using a range of methods and open discussion, CYP codesigned a series of Long Covid health information materials for younger audiences.

RESULTS

Sixty-six CYP (aged 10-18), and two young adults were involved. CYP codesigned specifications for the final materials and provided feedback on early designs. The project led to the development of a series of health information materials targeted at CYP: a short social media campaign with six short videos and a 12-page illustrated leaflet about Long Covid; released on social media and distributed in local area. All the CYP were positive about the project and their involvement.

DISCUSSION

Involving CYP led to the development of innovative and engaging information materials (influence). Developing rapport was important when working with CYP and this was facilitated by using approaches and activities to establish an environment (space) where the CYP felt comfortable sharing their views (voice) and being listened to (audience) by the adults in the project. Working with external groups who are willing to share their expertise can help the meaningful involvement of voices 'less heard'.

PUBLIC CONTRIBUTION

One CYP coapplicant contributed to the project design and facilitation of PPIE sessions, 64 CYP were involved in the PPIE sessions to design and feedback on materials. Two young adult media producers worked with CYP to produce these materials, another CYP supported this process. Three public contributors were involved in the preparation of this manuscript.

摘要

背景

本文描述并批判性地反思了儿童和年轻人 (CYP) 如何作为公众顾问参与制作针对年轻受众的关于长期新冠的健康信息材料。这项工作的基础是伦迪模型,该模型为促进 CYP 积极参与影响他们的事务提供了指导。

方法

在学校与 CYP 一起进行了 coproduction 活动,还与 CYP 利益相关者小组和患有长期新冠的 CYP 进行了视频会议。这些活动鼓励 CYP 专注于材料的内容、格式和设计,并使用基于问题的和协作式学习来鼓励他们参与项目。使用多种方法和开放讨论,CYP 共同设计了一系列针对年轻受众的长期新冠健康信息材料。

结果

共有 66 名 CYP(年龄在 10-18 岁之间)和 2 名年轻成年人参与了此次项目。CYP 共同设计了最终材料的规范,并对早期设计提供了反馈。该项目导致了一系列针对 CYP 的健康信息材料的开发:一个包含六个短视频的简短社交媒体活动和一个关于长期新冠的 12 页插图传单;在社交媒体上发布并在当地分发。所有的 CYP 对项目及其参与都持积极态度。

讨论

让 CYP 参与进来导致了创新和引人入胜的信息材料的开发(影响力)。与 CYP 合作时,建立融洽关系很重要,这可以通过使用方法和活动来营造一个环境(空间),使 CYP 感到舒适地分享他们的观点(声音)并被项目中的成年人倾听(受众)。与愿意分享专业知识的外部团体合作可以帮助那些“声音较少被听到”的人有意义地参与进来。

公众贡献

一位 CYP 共同申请人参与了项目设计和 PPIE 会议的促进,64 位 CYP 参与了 PPIE 会议以设计和反馈材料。两位年轻的成年媒体制作人与 CYP 一起制作这些材料,另一位 CYP 支持这个过程。三位公众贡献者参与了本文稿的准备。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96bb/11180295/d7df41bdf80f/HEX-27-e14115-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96bb/11180295/d7df41bdf80f/HEX-27-e14115-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/96bb/11180295/d7df41bdf80f/HEX-27-e14115-g001.jpg

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本文引用的文献

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BJGP Open. 2024 Apr 25;8(1). doi: 10.3399/BJGPO.2023.0143. Print 2024 Apr.
2
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Res Involv Engagem. 2023 Oct 12;9(1):91. doi: 10.1186/s40900-023-00496-5.
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Are We Ready to Really Hear the Voices of Those Concerned? Lessons Learned from Listening to and Involving Children in Child and Family Psychology Research.
我们是否准备好真正倾听那些相关人士的声音?从倾听和让儿童参与儿童与家庭心理学研究中学到的经验教训。
Clin Child Fam Psychol Rev. 2023 Dec;26(4):994-1007. doi: 10.1007/s10567-023-00453-4. Epub 2023 Sep 12.
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Long COVID and rehabilitation.长新冠和康复。
J Formos Med Assoc. 2024 Jan;123 Suppl 1:S61-S69. doi: 10.1016/j.jfma.2023.03.022. Epub 2023 Apr 13.
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Symptom patterns and life with post-acute COVID-19 in children aged 8-17 years: a mixed-methods study protocol.8至17岁儿童急性后新冠病毒感染的症状模式与生活:一项混合方法研究方案
BJGP Open. 2023 Jun 27;7(2). doi: 10.3399/BJGPO.2022.0149. Print 2023 Jun.
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Children (Basel). 2022 Dec 23;10(1):23. doi: 10.3390/children10010023.
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