Peninsula Dental School, University of Plymouth, Plymouth, UK.
Royal National ENT and Eastman Dental Hospital, London, UK.
Health Expect. 2024 Apr;27(2):e13991. doi: 10.1111/hex.13991.
The term 'care-experienced' refers to anyone who is currently in care or has been in care at any stage in their life. A complex interplay of factors leads to care-experienced children and young people (CECYP) experiencing poorer oral health and access to dental care than their peers. A rapid review of the co-production of health and social care research with vulnerable children and young people (CYP) was carried out to inform the development of a co-produced research project exploring the oral health behaviours and access to dental services of CECYP. Here, 'co-production' refers to the involvement of CYP in the planning or conduct of research with explicit roles in which they generate ideas, evidence and research outputs.
To learn how to meaningfully involve vulnerable CYP in the co-production of health and social science research.
To identify: Different approaches to facilitating the engagement of vulnerable CYP in co-production of health and social science research; different activities carried out in such approaches, challenges to engaging vulnerable CYP in co-production of health and social science research and ways to overcome them and areas of best practice in relation to research co-production with vulnerable CYP.
A rapid review of peer-reviewed articles was conducted in six databases (MEDLINE, Embase, SocINDEX, CINAHL, PsycINFO and Web of Science) and grey literature to identify studies that engaged vulnerable CYP in co-approaches to health and social research.
Of 1394 documents identified in the search, 40 were included and analysed. A number of different approaches to co-production were used in the studies. The CYP was involved in a range of activities, chiefly the development of data collection tools, data collection and dissemination. Individual challenges for CYP and researchers, practical and institutional factors and ethical considerations impacted the success of co-production.
Co-production of health and social science with vulnerable CYP presents challenges to researchers and CYP calling for all to demonstrate reflexivity and awareness of biases, strengths and limitations. Used appropriately and well, co-production offers benefits to researchers and CYP and can contribute to research that reflects the needs of vulnerable CYP. Adherence to the key principles of inclusion, safeguarding, respect and well-being facilitates this approach.
Members of our patient and public involvement and stakeholder groups contributed to the interpretation of the review findings. This manuscript was written together with a young care leaver, Skye Boswell, who is one of the authors. She contributed to the preparation of the manuscript, reviewing the findings and their interpretation.
“有照护经历”一词是指目前正在接受照护或在其生活的任何阶段接受过照护的任何人。各种复杂因素的相互作用导致有照护经历的儿童和青年（CECYP）的口腔健康状况和获得牙科护理的情况不如同龄人。对弱势群体儿童和青年（CYP）的健康和社会保健研究的共同制作进行了快速审查，以为正在进行的探索 CECYP 的口腔健康行为和获得牙科服务的共同制作研究项目提供信息。在这里，“共同制作”是指 CYP 参与具有明确角色的健康和社会科学研究的规划或开展，在这些角色中，他们提出想法、证据和研究成果。
学习如何有意义地让弱势 CYP 参与健康和社会科学研究的共同制作。
确定：促进弱势 CYP 参与健康和社会科学研究共同制作的不同方法；在这些方法中开展的不同活动、弱势 CYP 参与健康和社会科学研究共同制作的挑战以及克服这些挑战的方法以及与弱势 CYP 进行研究共同制作的最佳实践领域。
在六个数据库（MEDLINE、Embase、SocINDEX、CINAHL、PsycINFO 和 Web of Science）和灰色文献中对同行评议文章进行了快速审查，以确定参与弱势 CYP 共同进行健康和社会研究的研究。
在搜索中确定了 1394 篇文献，其中 40 篇被纳入并进行了分析。研究中使用了多种不同的共同制作方法。CYP 参与了一系列活动，主要是开发数据收集工具、数据收集和传播。CYP 和研究人员的个人挑战、实际和机构因素以及道德考虑因素影响了共同制作的成功。
与弱势 CYP 共同制作健康和社会科学研究对研究人员和 CYP 提出了挑战，要求所有人都表现出反思能力和对偏见、优势和局限性的认识。如果使用得当，共同制作可为研究人员和 CYP 带来益处，并有助于研究反映弱势 CYP 的需求。遵守包容、保障、尊重和福祉的关键原则可以促进这种方法。
我们的患者和公众参与以及利益相关者团体的成员为审查结果的解释做出了贡献。这份手稿是与一位名叫斯凯·博斯韦尔的年轻照护脱离者共同撰写的，他是作者之一。她为准备手稿、审查调查结果及其解释做出了贡献。
