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生育诊所对那些经过治疗仍未生育子女的患者负有照护责任。

Fertility clinics have a duty of care towards patients who do not have children with treatment.

作者信息

Gameiro S, Leone D, Mertes H

机构信息

School of Psychology, Cardiff University, Cardiff, UK.

Unit of Clinical Psychology, San Paolo University Hospital, Milan, Italy.

出版信息

Hum Reprod. 2024 Aug 1;39(8):1591-1598. doi: 10.1093/humrep/deae128.

DOI:10.1093/humrep/deae128
PMID:38890127
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11291940/
Abstract

In medically assisted reproduction (MAR) success has mostly been measured in terms of achieving (healthy) livebirths. We argue this focus is too narrow and that success should be measured in terms of alleviating patient suffering caused by an unfulfilled child wish. The major implication is that clinics must better tailored care to effectively support patients who do not have child(ren) with treatment. First, we argue that clinics have a duty of care towards patients for whom MAR does not result in children because this is a common treatment outcome, because treatment is burdensome and creates new losses for patients, and because the field has the necessary expertise to provide support and it is part of patient-centred care. Then, we examine concerns about the adequacy of addressing the possibility that treatment may end without children, namely, that this may hinder patients' hope and put them off doing treatment, and that it may be perceived as a sign of clinical incompetence, as well as concerns about the required skill set. We end with a set of research-informed recommendations to promote healthy adjustment to ending fertility treatment without children. These focus on the need to reconceptualize 'success' and 'failure' in MAR, to promote open discussion about the possibility of treatment not resulting in children and encourage patients to develop 'plan(s) B', to support patients who end treatment without children, and to create the organizational structures needed to support clinics and healthcare professionals in this endeavour.

摘要

在医学辅助生殖(MAR)中,成功大多是以实现(健康的)活产来衡量的。我们认为这种关注点过于狭隘,成功应以减轻因未实现生育愿望而给患者带来的痛苦来衡量。主要的影响是,诊所必须更好地量身定制护理,以有效支持那些接受治疗但未育有子女的患者。首先,我们认为诊所对那些接受医学辅助生殖但未育有子女的患者负有照护责任,因为这是一种常见的治疗结果,因为治疗是繁重的且会给患者带来新的损失,还因为该领域具备提供支持所需的专业知识,且这是患者中心护理的一部分。然后,我们审视了对于处理治疗可能无果而终这一可能性是否充分的担忧,即这可能会阻碍患者的希望并使他们放弃治疗,还可能被视为临床能力不足的表现,以及对所需技能组合的担忧。我们最后提出了一系列基于研究的建议,以促进对未育有子女而结束生育治疗的健康调适。这些建议着重于重新界定医学辅助生殖中的“成功”与“失败”,促进对治疗可能无法育有子女这一可能性进行开放的讨论,并鼓励患者制定“备用计划”,支持那些未育有子女而结束治疗的患者,以及创建所需的组织结构,以支持诊所和医疗保健专业人员开展此项工作。

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本文引用的文献

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Driving factors in treatment decision-making of patients seeking medical assistance for infertility: a systematic review.寻求不孕不育医疗援助的患者治疗决策的驱动因素:系统综述。
Hum Reprod Update. 2024 May 2;30(3):341-354. doi: 10.1093/humupd/dmae001.
2
What is bad news in fertility care? A qualitative analysis of staff and patients' accounts of bad and challenging news in fertility care.生育保健中的坏消息是什么?对生育保健中坏消息和具有挑战性的消息的工作人员和患者叙述的定性分析。
Hum Reprod. 2024 Jan 5;39(1):139-146. doi: 10.1093/humrep/dead231.
3
Deconstructing self-fulfilling outcome measures in infertility treatment.解构不孕症治疗中的自我实现结局指标。
Bioethics. 2024 Sep;38(7):616-623. doi: 10.1111/bioe.13226. Epub 2023 Oct 3.
4
Discussing the possibility of fertility treatment being unsuccessful as part of routine care offered at clinics: patients' experiences, willingness, and preferences.探讨在诊所常规护理中讨论生育治疗不成功的可能性:患者的体验、意愿和偏好。
Hum Reprod. 2023 Jul 5;38(7):1332-1344. doi: 10.1093/humrep/dead096.
5
Qualitative evaluation of the acceptability and feasibility among healthcare professionals and patients of an ART multi-cycle treatment planning and continuation intervention prototype.定性评估医疗保健专业人员和患者对一种 ART 多周期治疗计划和延续干预原型的可接受性和可行性。
Hum Reprod. 2023 Mar 1;38(3):430-443. doi: 10.1093/humrep/deac272.
6
Feasibility and acceptability of psychosocial care for unsuccessful fertility treatment.不孕不育治疗失败后提供心理社会关怀的可行性和可接受性。
Health Expect. 2022 Dec;25(6):2902-2913. doi: 10.1111/hex.13598. Epub 2022 Sep 20.
7
Feasibility randomized controlled trial of a self-guided online intervention to promote psychosocial adjustment to unmet parenthood goals.一项自我引导的在线干预措施促进未满足的父母身份目标的心理社会适应的可行性随机对照试验。
Hum Reprod. 2022 Sep 30;37(10):2412-2425. doi: 10.1093/humrep/deac168.
8
Evaluating group psychological interventions for mental health in women with infertility undertaking fertility treatment: A systematic review and meta-Analysis.评估群体心理干预对接受生育治疗的不孕女性心理健康的影响:系统评价和荟萃分析。
Health Psychol Rev. 2023 Sep;17(3):377-401. doi: 10.1080/17437199.2022.2058582. Epub 2022 Apr 11.
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Great expectations of IVF patients: the role of gender, dispositional optimism and shared IVF prognoses.体外受精患者的期望:性别、性格乐观和共同的体外受精预测的作用。
Hum Reprod. 2022 May 3;37(5):997-1006. doi: 10.1093/humrep/deac038.
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The Language of Failure.失败的语言
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