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特发性肺纤维化患者的健康教育:范围综述。

Patient education for individuals with Interstitial Lung Disease: A scoping review.

机构信息

Physiotherapy, Manipal College of Health Professions, Manipal Academy of Higher Education, Manipal, Karnataka, 576104, India.

Respiratory Medicine, Kasturba Medical College, Manipal Academy of Higher Education, Manipal, Karnataka, 576104, India.

出版信息

F1000Res. 2024 Apr 26;13:405. doi: 10.12688/f1000research.147340.1. eCollection 2024.

Abstract

OBJECTIVES

Interstitial Lung Disease (ILD) is a severe and rapidly progressing disease with a high fatality rate. Patient education (PE) has been demonstrated to promote long-term adherence to exercise and lifestyle improvements by assisting patients in developing self-management techniques. Our scoping review's goal was to chart out the prevailing level of research about the content, processes, and effectiveness of PE for patients with ILD.

METHODS

The relevant databases were searched using the rules provided by Arksey and O'Malley in 2005 and the Joanna Briggs Institute reviewers' manual 2015: an approach for JBI scoping reviews. Individuals with ILD, published in English between the years of inception and 2020, and describing PE administered by various healthcare practitioners were among the 355 studies found and reviewed. Thirteen studies met these criteria.

RESULTS

PE delivery process, delivery techniques, quality of life assessments, common PE themes, and healthcare professional participation were all recognized and cataloged.

CONCLUSION

Despite the fact that healthcare professionals (physicians, nurses, and physiotherapists) provide PE to patients with ILD regularly, the PE provided varies greatly (contents of PE, process of delivery and delivery techniques). During the scoping review, a significant variation in the themes was addressed. They could not provide any evidence-based specific recommendations for all healthcare practitioners due to the studies' heterogeneity and lack of effectiveness measures.

摘要

目的

间质性肺疾病(ILD)是一种严重且进展迅速的疾病,死亡率很高。患者教育(PE)已被证明通过帮助患者发展自我管理技术,促进长期坚持运动和改善生活方式。我们的范围综述旨在描绘ILD 患者 PE 的内容、过程和效果的研究现状。

方法

根据 2005 年 Arksey 和 O'Malley 以及 2015 年 Joanna Briggs 研究所审查员手册的规则,对相关数据库进行了搜索:JBI 范围综述方法。共检索到 355 项研究,其中包括在成立年份至 2020 年期间以英文发表的ILD 患者的研究,以及描述由各种医疗保健从业者实施的 PE。符合这些标准的有 13 项研究。

结果

PE 交付过程、交付技术、生活质量评估、常见的 PE 主题以及医疗保健专业人员的参与都得到了认可和分类。

结论

尽管医疗保健专业人员(医生、护士和物理治疗师)经常为ILD 患者提供 PE,但提供的 PE 差异很大(PE 的内容、交付过程和交付技术)。在范围综述过程中,解决了主题的显著差异。由于研究的异质性和缺乏有效性措施,他们无法为所有医疗保健从业者提供基于证据的具体建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f70f/11184280/cbc8a1f49715/f1000research-13-161527-g0000.jpg

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