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本文引用的文献

1
Evolving Advance Care Planning in a Health Ecosystem: The Kaiser Permanente Experience.在医疗生态系统中不断发展的预先医疗指示规划:凯泽 Permanente 的经验。
J Pain Symptom Manage. 2023 Aug;66(2):e245-e253. doi: 10.1016/j.jpainsymman.2023.03.008. Epub 2023 Apr 11.
2
Disparities in patient portal access and the role of providers in encouraging access and use.患者门户访问的差异以及提供者在鼓励访问和使用方面的作用。
J Am Med Inform Assoc. 2023 Jan 18;30(2):308-317. doi: 10.1093/jamia/ocac227.
3
The end of life experiences of people living with socio-economic deprivation in the developed world: an integrative review.发达国家中社会经济贫困人群的临终经历:综合回顾。
BMC Palliat Care. 2022 Nov 5;21(1):193. doi: 10.1186/s12904-022-01080-6.
4
Local Area Hospice Capacity and Rural Disparities in Hospice Use among Older Adults with Metastatic Breast Cancer.局部地区临终关怀能力与转移性乳腺癌老年患者接受临终关怀服务的农村差异。
J Palliat Med. 2023 Feb;26(2):182-190. doi: 10.1089/jpm.2022.0227. Epub 2022 Sep 30.
5
Deprescribing Education vs Usual Care for Patients With Cognitive Impairment and Primary Care Clinicians: The OPTIMIZE Pragmatic Cluster Randomized Trial.认知障碍患者和初级保健临床医生的减药教育与常规护理的比较:OPTIMIZE 实用聚类随机试验。
JAMA Intern Med. 2022 May 1;182(5):534-542. doi: 10.1001/jamainternmed.2022.0502.
6
A Race-Conscious Approach Toward Research on Racial Inequities in Palliative Care.种族意识视角下的缓和医疗中的种族不平等问题研究。
J Pain Symptom Manage. 2022 May;63(5):e465-e471. doi: 10.1016/j.jpainsymman.2021.11.012. Epub 2021 Nov 29.
7
The Impact of Digital Patient Portals on Health Outcomes, System Efficiency, and Patient Attitudes: Updated Systematic Literature Review.数字患者门户对健康结果、系统效率和患者态度的影响:更新的系统文献综述。
J Med Internet Res. 2021 Sep 8;23(9):e26189. doi: 10.2196/26189.
8
Characteristics of Patients and Proxy Caregivers Using Patient Portals in the Setting of Serious Illness and End of Life.在严重疾病和生命末期背景下使用患者门户的患者和代理护理者的特征。
J Palliat Med. 2021 Nov;24(11):1697-1704. doi: 10.1089/jpm.2020.0667. Epub 2021 May 28.
9
Disparities in Electronic Health Record Patient Portal Enrollment Among Oncology Patients.肿瘤患者电子健康记录患者门户注册中的差异。
JAMA Oncol. 2021 Jun 1;7(6):935-937. doi: 10.1001/jamaoncol.2021.0540.
10
Patient Portal Use Near the End-of-Life.临终时患者门户网站的使用
J Gen Intern Med. 2021 Jan 27. doi: 10.1007/s11606-020-06333-9.

患者死亡前 12 个月内,患者门户活动与临终结局之间的关联。

Association Between Patient Portal Activities and End-of-Life Outcomes Among Deceased Patients in the Last 12 Months of Life.

机构信息

Division of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine Anschutz Medical Campus, Aurora, Colorado, USA.

Institute for Health Research, Kaiser Permanente Colorado, Aurora, Colorado, USA.

出版信息

J Palliat Med. 2024 Jul;27(7):916-921. doi: 10.1089/jpm.2023.0610. Epub 2024 Jun 21.

DOI:10.1089/jpm.2023.0610
PMID:38904086
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11339548/
Abstract

The objective of this study was to examine the association between portal use and end-of-life (EOL) outcomes in the last year of life. A retrospective cohort ( = 6,517) study at Kaiser Permanente Colorado among adults with serious illness deceased between January 1, 2016, and June 30, 2019. Portal use was categorized into engagement types: no use, nonactive, active without a provider, and active with a provider. EOL outcomes were hospitalizations in the month before death, last-year advance directive completion, and hospice use. Association between EOL outcomes and levels of portal use was assessed using χ statistics and generalized linear models. Higher portal engagement types were associated with higher rates of hospitalizations ( = 0.0492), advance directive completion ( = 0.0226), and hospice use ( = 0.0070). Portal use in the last year of life was associated with increases in a poor EOL outcome, hospitalizations, and beneficial EOL outcomes, advance directives, and hospice care.

摘要

本研究旨在探讨在生命的最后一年中,使用门户与临终结局之间的关联。这是一项在科罗拉多州 Kaiser Permanente 进行的回顾性队列(=6517)研究,纳入了 2016 年 1 月 1 日至 2019 年 6 月 30 日期间去世的患有严重疾病的成年人。将门户使用分为以下几种参与类型:未使用、非活跃、无提供者的活跃和有提供者的活跃。临终结局包括死亡前一个月的住院情况、去年预立医疗指示的完成情况和临终关怀的使用情况。使用卡方检验和广义线性模型评估临终结局与门户使用水平之间的关联。更高的门户参与类型与更高的住院率(=0.0492)、预立医疗指示的完成率(=0.0226)和临终关怀使用率(=0.0070)相关。生命最后一年的使用门户与较差的临终结局、住院和有益的临终结局、预立医疗指示和临终关怀相关。