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癌症患者对提供其自身医疗会诊录音的态度和体验:一项横断面在线调查。

Attitudes and experiences of cancer patients toward the provision of audio recordings of their own medical encounter: a cross-sectional online survey.

作者信息

Topf Cheyenne, Scholl Isabelle, Hahlweg Pola

机构信息

Department of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.

出版信息

Front Psychol. 2024 Jun 19;15:1378854. doi: 10.3389/fpsyg.2024.1378854. eCollection 2024.

Abstract

BACKGROUND

The provision of audio recordings of their own medical encounters to patients, termed consultation recordings, has demonstrated promising benefits, particularly in addressing information needs of cancer patients. While this intervention has been explored globally, there is limited research specific to Germany. This study investigates the attitudes and experiences of cancer patients in Germany toward consultation recordings.

METHODS

We conducted a nationwide cross-sectional quantitative online survey, informed by semi-structured interviews with cancer patients. The survey assessed participants' attitudes, experiences and desire for consultation recordings in the future. The data was analyzed using descriptive statistics and subgroup analyses.

RESULTS

A total of 287 adult cancer patients participated. An overwhelming majority (92%) expressed a (very) positive attitude. Overall, participants strongly endorsed the anticipated benefits of the intervention, such as improved recall and enhanced understanding. Some participants expressed concerns that physicians might feel pressured and could become more reserved in their interactions with the use of such recordings. While a small proportion (5%) had prior experience with audio recording medical encounters, the majority (92%) expressed interest in having consultation recordings in the future.

DISCUSSION

We observed positive attitudes of cancer patients in Germany toward consultation recordings, paralleling international research findings. Despite limited experiences, participants acknowledged the potential benefits of the intervention, particularly related to recalling and comprehending information from medical encounters. Our findings suggest that the potential of the intervention is currently underutilized in German cancer care. While acknowledging the possibility of a positive bias in our results, we conclude that this study represents an initial exploration of the intervention's potential within the German cancer care context, laying the groundwork for its further evaluation.

摘要

背景

向患者提供其自身医疗会诊的录音,即会诊录音,已显示出有前景的益处,尤其是在满足癌症患者的信息需求方面。虽然这种干预措施已在全球范围内得到探索,但针对德国的具体研究有限。本研究调查了德国癌症患者对会诊录音的态度和体验。

方法

我们在对癌症患者进行半结构化访谈的基础上,开展了一项全国性的横断面定量在线调查。该调查评估了参与者对会诊录音的态度、体验以及未来对会诊录音的需求。使用描述性统计和亚组分析对数据进行了分析。

结果

共有287名成年癌症患者参与。绝大多数(92%)表达了(非常)积极的态度。总体而言,参与者强烈认可该干预措施预期的益处,如改善记忆和增强理解。一些参与者担心医生可能会感到有压力,并且在使用此类录音进行互动时可能会变得更加拘谨。虽然一小部分(5%)患者此前有过医疗会诊录音的经历,但大多数(92%)表示未来对会诊录音感兴趣。

讨论

我们观察到德国癌症患者对会诊录音持积极态度,这与国际研究结果一致。尽管经历有限,但参与者认识到该干预措施的潜在益处,特别是与回忆和理解医疗会诊中的信息有关。我们的研究结果表明,在德国癌症护理中,该干预措施的潜力目前未得到充分利用。虽然承认我们的结果可能存在积极偏差的可能性,但我们得出结论,本研究是对该干预措施在德国癌症护理背景下的潜力的初步探索,为其进一步评估奠定了基础。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5a41/11220273/f1622a4ebc13/fpsyg-15-1378854-g001.jpg

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